My nephew Grey was born prematurely on 17th November 2019 (coincidentally World Prematurity Day), at 31 weeks. In the days that followed his birth we discovered, devastatingly, that he had a severe congenital brain abnormality. On 8th December 2019, 21 days after he was born, he slipped away in my sisters arms. Grey was looked after by the incredible  team in the William Harvey Hospital NICU. 

Bliss is the UK’s leading charity for babies born premature or sick. Bliss champions the right for every baby born premature or sick (or both) to receive the best care. They achieve this by empowering families, influencing policy and practice, and enabling life-changing research.