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Lorena Jarvis avatar
Lorena Jarvis

Lorena's Wing walk page

I am taking part in a wing walk for Trigeminal Neuralgia Association UK because It is an important charity to my family

106 %
£1,598.30
raised of £1,500 target
by 64 supporters
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  • Event: Wing walk, 22 Jun 2019

Trigeminal Neuralgia Association UK

It aims to provide information and support to members, and to raise awareness of trigeminal neuralgia amongst medical professions and the general public. Above all, it is there to provide hope and encouragement for patients who can feel isolated and depressed as a result of this excrutiatingly painful condition.

Charity Registration No. 1155001

Story

Thanks for taking the time to visit my JustGiving page.

My amazing Mum's story:

In 2012 I was having lots of pain along my lower jaw so went to the dentist, where I had a wisdom tooth removed, but a few days later the shocks were still there so I went back to the dentist who said it could be Trigeminal Neuralgia. I then visit my doctors who conform that it was in fact Trigeminal Neuralgia and arranged for me to have a MRI scan where they found a Tumour on my Brian that is lying on the Trigeminal nerve,I was then advised to have radiotherapy, so in 2014 I had 30 sessions of radiotherapy over six weeks. This worked and the Tumour shrunk but I still have Trigeminal neuralgia which is one of the most painful things and is commonly known as the suicide disease. I’m one of the lucky ones and my pain is mainly under control with medication. The Trigeminal neuralgia charity helped me to understand what my condition is and through them and Facebook I have joined a lot of support groups.

This is a charity which currently relies solely on donations and members subscription. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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