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Louisa Sheppard avatar
Louisa Sheppard

Louisa & Rich - Half Marathon for Perthes

We are doing the Half Marathon to raise cash for PERTHES ASSOCIATION because our son was diagnosed with Perthes last year.

138 %
£690.00
raised of £500 target
by 37 supporters
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  • Team members: Louisa & Rich
  • Event: Sage Reading Half Marathon 2019, 17 Mar 2019

PERTHES ASSOCIATION

We support families affected by Perthes to give them hope for the future

Charity Registration No. 326161

Story

Thanks for taking the time to visit my JustGiving page.

Until last year when our son was diagnosed, we’d never heard of Perthes. It’s a rare condition which affects the bone (usually hip) in which the head of the joint loses its blood supply temporarily (cause is unknown) and so the bone dies and effectively disintegrates. 

The symptoms include a limp, pain and the shortening of the leg. Treatment is limited - it means no running, jumping, climbing, football etc  until the bone regrows - basically banning activities that kids aged 4 to 12 enjoy for several YEARS.  

Our son has a weekly hydrotherapy session along with other sufferers. Some end up using crutches or are in wheelchairs. 

Eventually, for most,  bone will regrow and hopefully shape well enough to remain in the joint. Very little is known about Perthes and each child is different. Dogs get it too - and the treatment is the same! 

Although our son is currently handling it really well, he has been told it’ll take up to 4 years before he can run again - he’s only 7! Children we know have ended up in traction for weeks to try and reduce the pain. Others are subjected to invasive tests and even surgery. We’d like to contribute to research into its causes and to help families cope with the day to day issues that arise from having a kid with Perthes. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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