Hello, my name is Louis and I am 3 years old. I was a slow mover as a baby and didn’t walk until after my second birthday. When I was two and a half, doctors diagnosed me with Spastic Diplegia, a form of Cerebral Palsy.
This means that my muscles are so tight I’m unable to straighten my legs or left arm fully. This means I find it difficult to do simple things like sitting on the floor with my legs out front, get myself up from the seated, get myself dressed/undressed and I struggle to keep my balance, or even stand still! My little legs get tired easily so I often still share a buggy with my baby sister. Mummy and Daddy stretch my legs and arm muscles every day, I have to wear day time splints to help hold my heels down, a lyrca suit and glove to help my muscles get stronger and I wear a bed time splint too.
Mummy and Daddy have found out about an operation called Selective Dorsal Rhizotomy which could help me achieve my dream. The operation would mean the vertebrae in my lower back being opened to gain access to the nerve roots. They would then find the abnormal roots causing the spasticity and cut them. This operation aims to achieve a long-term reduction in spasticity, improve mobility and increase my independence.
The operation is just the start of the process though, as following this I will need intense physiotherapy for up to 2 years.
To have this operation in the UK we need to raise around £40,000 – I really hope you can help me realise my dream of being a boy who is able to play football, climb at play areas and run fast to keep up with my friends.
I am such a hard working little boy who does all of my stretches and exercises and I promise I will do all of my physiotherapy after my operation - but I need your help! Thank you xxx
Should we exceed the target amount (or if we do not raise enough funds, or they cannot be used for any other reason) the funds raised will go to the general funds of Tree of Hope to assist other sick children.
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