A very close friend of mine has a daughter with Acrodysostosis and there are only another 93 people worldwide that are known to have the condition! 

I aim to run 250miles by the end of the year to raise much needed funds and awareness of this extremely rare condition. I have decided on 250miles because Great Ormond Street Hospital and Sparks will give 250k to go towards research into Acrodysostosis! HOWEVER £62,500 needs to be raised by April 2021 in the way of fundraising.

My aim is to raise as much as possible before then so please if you can your donation would be gratefully received!

Thank you!

Dear friends, Our mission is simple, to change the lives, support & treatment for our patient families living with acrodysostosis. We have been given the chance of a life time by our partners Great Ormond Street hospital and Sparks to find & fund a researcher. the successful research applicant will be given up to £250k.But there's a catch.. WE need to raise the 25% pledge of £62.500k by April 2021!alone we don't stand much of a chance but together with your help this CAN be achieved. for more info please go to www.acrodysostosis.org