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Lucy Evans avatar
Lucy Evans

Lucy's Fund raising for encephalitis

I will be carrying out fundraising events for The Encephalitis Society because It is a rare disease that needs money and research

11 %
£5,737.50
raised of £50,000 target
by 107 supporters
Donate

The Encephalitis Society

We support those affected by Encephalitis to improve their quality of life.

Charity Registration No. 1087843

Story

Thanks for taking the time to visit my JustGiving page.

Through my recovery of encephalitis NMDA it has made me incredibly passionate. Encephalitis is such a rare condition that only affects roughly 1 in 2million people, out of those people 1/3 don't survive. The condition is so rare and there is simply not enough money invested for they research of this horrible disease. 80% of medics have never heard of this type of encephalitis. Also 80% of people with this disease are females with an ovarian teratoma which causes the attack on the brain. The teratoma is removed, meaning that they are cured. I am one of the 20% who unfortunately don’t have a teratoma to be removed, meaning the cause of the attack is unknown. This means the relapse rate is high and that I will battle this for life. Encephalitis has a massively high mortality rate in comparison to other infectious diseases and if not treated immediately can become fatal very quickly. Encephalitis is when the brain becomes swollen or infammed due to the immune system attacking the brain in error. The mission of the encephalitis society is to help professionals lead research into the brain condition and to live in a world where encephalitis is as rare as it can possibly be and to gain access to early diagnosis. My life has changed for good due to the permanent damage to my brain, daily tasks are now a challenge and many things such as my memory, stutters, involuntary movements and cognitive thinking have been effected. These are not problems but life adaptations and positivity is the only way you'll get through something so life changing. Especially with a high rate of relapse, treasure every moment of your life.

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