This is our family page and we have are made various fund raising efforts since Martin died. We are raising money in Martin's memory, to aid research into this terrible disease and to help us come to terms with his passing. We miss you so much Martin, Dad, Nonno. We are going to try and raise lots of money and make you proud.
In 2017 Vicki will be doing the Bolton Ironman UK triathlon for the second year in a row, 2,4 mile swim, 112 miles bike, 26.2 mile run. All for the charity Raynaud's & Scleroderma. Also, she will be completing two 1/2 Ironman distance events.
Never heard of Scleroderma? Neither had we until Martin was diagnosed with the condition over 12 years ago by a very clever consultant who was determined to get to the bottom of his health problems. He said, "you have Scleroderma, good luck with that!" Raynaud's is a related condition which often accompanies it and causes pain, swelling and functional impairment of the fingers and toes.
Scleroderma (which comes from the Greek meaning ‘hard skin’) is a connective tissue disease that affects the skin and other major internal organs. Excess collagen is laid down in these organs which in turn results in scarring and reduced normal function of the affected organs.
Martin had the disease in his small bowel and oesopagus. The walls of his digestive system gradually lost their push over the years, and eventually he became unable to eat. He suffered constant bouts of sickness, coupled with terrible indigestion and was incredibly resiliant and brave.
Although he had incredible support and medical care, it is a rare condition which the medics know very little about. To be diagnosed with Scleroderma is a voyage into the unknown and it makes the condition even more difficult to live with.
Significant advances have been made into the understanding of the condition but precise causes are not fully understood. Much more research is needed to help sufferers of Reynaud's and Scleroderma. We want to do our bit to raise money for more research and to help others who suffer.
Thanks for taking the time to visit our JustGiving page and we appreciate any donation you can make.
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