Our lovely daughter has cystic fibrosis. Her diagnosis came as a shock to us and the rest of our family. Everyday we give her about 15 doses of medicines, pat her back with physiotherapy to clear her lungs of sticky mucous. Little did we know that we were part on the 1:25 who carries the genetic mutation. So far, of all family who have been tested all have come back as carriers. We were all blissfully unaware. Sadly, it is her life and diagnosis that brought the condition to the forefront of our family.
We are helping to raise funds for the CF Trust. They provided support and information in the early days and play a key role in funding support and research for cystic fibrosis. A CF research scientist sent me this email
"You and your family should be very positive about your daughter's future. She was identified by newborn screening, the multidisciplinary teams that care for individuals with CF do an amazing job and new therapies that tackle the root cause are now being tested in the clinic."
Raising money to help her and others with CF is just one small thing we can do. Please help us support the charity that helps people and their families with CF, funds vital research and treatments.
Follow my blog at http://mummymedic.wordpress.com to learn more about us and our family.
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