We are skydiving to raise money for the CF Trust. They fund research into treatments for cystic fibrosis, support for people with CF and their families. Skydiver Sethina's 1 year old daughter has CF. She lives her life each day with joy and giggles. Yet her life expectancy is 43. We are not happy about that at all. Taking medicine 24 hours a day is normal for her. It shouldn't be. Let's help her face a brighter future. Let's help thousands of others too. We have met/connected with some amazing people also on this CF journey. This jump is also for all of you. Your little angels and your future dreams. Let's end this illness.
We are terrified. We are dedicated and we need your donations! PLEASE!!! We need to raise an absolute minimum of £2730 - every penny helps. Please donate. Text message donations start at just £1.
Meet our amazing team of skydivers!!
I'm Minty's mum and a delta F508 carrier. I'm not stopping fundraising until Minty can have a normal life. Every day I wake up and check the news to see if there are any treatments for her CF genetic mix. Not yet, but one day there will and it will because people like you gave a few pounds to help. It does make a difference. Please give! Thank you!
I'm Minty's dad. Minty is a cheeky ray of sunshine. Her favourite things (apart from Mummy) are "playing music" and dancing. Every day she has to put up with many syringes of medicines to keep her healthy, enzymes to swallow with every meal or snack and physiotherapy. She does it with a smile and a giggle. But despite all this, she has had multiple infections in her short life so far, and her future health is uncertain. The CF Trust funds research that is developing medicines to help many people with CF. There is no specific medicine for Minty's genotype yet, but with more research and develplment this can change. That's why I'm fundraising for the CF Trust. Please support our jump for Minty! Thank you.
For a long time I have been aware of the medical issues that people suffering with cystic fibrosis have to deal with. Meeting Minty and seeing exactly how the disease impacts upon her life and the lives of her family has however been more eye-opening and inspirational that I'd ever thought. There is currently ongoing research into the development of medications and medical techniques which aim to prolong life expectancy and improve the life quality of cystic fibrosis sufferers. The potential of these new interventions is huge. Real advancements in the treatment of cystic fibrosis are possible and in a time frame that would significantly help Minty and other children of her age. Such advancements could increase her life expectancy by 20-30 years and enable her to lead a much more normal life. The Cystic Fibrosis Trust helps raise money to fund this research and offer much needed support to affected families.
Like most sensible people, the thought of jumping out of a plane (or rather being pushed out by the instructor) is pretty terrifying. Doing a skydive is something that I have always very much wanted to do however have never found the courage to actually go through with. This is an opportunity for me to do something challenging in support of a charity that can and does make a huge difference to those affected by cystic fibrosis. We are hoping to increase awareness of the charity and hopefully raise a good sum of money to help them continue their work.
Any amount of money that you can give to help us achieve this goal and support Minty would be extremely helpful and very much appreciated.
I have long been an admirer of Sethina's drive and tenacity to tackle any challenge head on and now I have the opportunity to do something to help too. And what a challenge we have to take on... As you have read above cystic fibrosis is a disease that shortens the life of too many. But curative treatments are a only short reality away. All we need to do is help provide the funds so research can continue and achieve this amazing goal.
So please sponsor me to hurl myself out of a plane from 21,000ft. It's a terrifying thought and not even having a strapping skydive instructor strapped to my back makes it sound any better! Whatever you can give will make a huge difference in the future of all CF sufferers and in particular Minty and her amazing family x
I’ve been a very good friend of Minty’s dad since we were in University together in the early 90’s. When I heard the news that his new baby daughter had cystic fibrosis I was very concerned for everyone. I cannot imagine the emotions and stresses that Paul and Sethina have been through in Minty’s first year, but when I visited the other day I had a great time playing with Minty and whatever struggles they have gone through, I think Minty is testament to what an amazing job they are doing.
Doing this Skydive is a way for me to kill several birds (hopefully not literally!); to give my support to the family and to the research that could make such a massive difference to Minty’s life, to realise a dream I’ve had for years of doing something like this, and to lose a little weight to get fit for it. I’m also really glad that I’m doing this with Paul - as we have been through a fair few scrapes/adventures together!
So please sponsor me/us and make the difference when we’re jumping out of a plane at 10,000 feet!
As a medic, I understand the clinical side of Cystic Fibrosis and have spent time with patients with the condition. I can see how research has already made a huge improvements in healthcare for those with the condition but I also see how much further we have to go.
As a mummy, I can't imagine how I'd deal with the news of a diagnosis of life-limiting condition such as CF in my own children. I see how much daily effort (over and above all the things that you do as a parent anyway) Sethina and Paul make with Minty to give her the best possible chance at a normal life.
As a mummy-medic, Sethina has been an inspiration to me for quite a while - she was very important to me in helping me make one of the best decisions of my life to retrain as a doctor. I'm doing this for her, for her gorgeous daughter and for all the other people for whom more money into research via the CF Trust can make an enormous and positive difference to their lives.
I'm not normally scared by much at all but the idea of a skydive genuinely terrifies me - I am seriously only doing this to raise a big wodge of money - let's make this happen!
Our jump date is set for June 8th 2014 in sunny Swindon.
Thanks for taking the time to visit our JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.