Thanks for taking the time to visit my JustGiving page.
I am doing this walk to raise funds for ReverseRett.A charity that has been set up to help fund the research to find a cure.
Rett Syndrome affects nearly every aspect of these girls' lives; taking away their ability to walk, talk and use their hands. Many girls have problems with breathing and eating. Many have seizures.
Research has shown that girls with Rett do not have brain damage. They know and understand much more than their bodies allow them to show - but they are locked in, trapped by a body that cannot obey signals from their brain.
Rett Syndrome is most often caused by a spontaneous genetic mutation and can occur in any family at any time. It affects around 1:10,000 live female births.
Whilst there is currently no treatment for Rett Syndrome, there is hope.
In 1999 scientists identified the genetic mutation that causes Rett Syndrome. In 2007, they unexpectedly reversed the condition in mouse models of even late stage disease.