Miss Drew is 3 years old with a rare genetic condition called Williams syndrome. Along with many health complications, it also consists of learning difficulties and a very unique zest for life. Only 1 in 18000 in the UK have it and only 1 in 30 GP’s will ever meet someone with it.
New families struggle with diagnosis as its so rare they have not much info and nobody to help. The Williams syndrome foundation step in and send all the info they need and put them in touch with new families. They are invaluable to people going through the most difficult time of their lives. Their ongoing support and help is amazing and they organise annual meet ups for all the kids and families in Scotland. They put a lot of money in to research for Williams syndrome to help make the future brighter for individuals with the condition.
Finally they receive no government funding, so they rely on families to help raise the funds required to continue their amazing work.
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