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£330.00
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Nick Keymer avatar
Nick Keymer

Motor Neurone Disease Appeal

I am running a half marathon with my step son for Funding Neuro because I would like to raise money for this charity

66 %
£330.00
raised of £500 target
by 19 supporters
Donate
  • In memory of: Brian Risely
  • Event: Perkins Great Eastern Run 2019, 13 Oct 2019

Motor Neurone Disease Appeal

This campaign will lay the foundations for human trials of a pioneering therapy for Motor Neurone Disease (MND). The fatal disease affects the brain and nerves and causes weakness over time. There is currently no cure for the condition.

Charity Registration No. SC042061

Story

My step son Joshua Middleton  & I are running the great eastern run on October 13th in memory of my father in law/ Josh’s grandad. He battled Motor Neurone, but it gradually took over his body and then was  taken too soon by this debilitating and fatal disease.  We would like to give back for the care he received and thank everyone at Addenbrokes Hospital that made his last years as comfortable as possible.  Please give just a little, none of us know what is round the corner for us.

This campaign will lay the foundations for human trials of a pioneering therapy for Motor Neurone Disease (MND). The fatal disease affects the brain and nerves and causes weakness over time. There is currently no cure for the condition.The work led by Bristol-based neurosurgeon Professor Steven Gill brings combines three elements: Gene Therapy with Viral Vectors delivered via Convection Enhanced Delivery CED.It is known that specific viruses can have a therapeutic effect on motor neurons and a technique called Convection Enhance Delivery (CED). This is able to deliver these viruses directly to the neurons in the brain. For many diseases such as MND. Delivery of genes to affected neurons to correct or repair defects has been a major challenge.The cost of the pre-clinical stage is £150,000. Thanks to My Name5 Doddie Foundation we are a third of the way there! Please help support our campaign by donating and together we can hopefully make a major breakthrough that will help.

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