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Orla Nally avatar
Orla Nally

A walk for Amie

Our family are taking part in a sponsererd walk for Nystagmus Network because Our daughter has nystagmus.

288 %
£1,441.28
raised of £500 target
by 28 supporters
Donate
  • Team members: Ronan Ginnell, Maia Ginnell, Amie Ginnell, Orla Nally
  • Event: Eye to Eye 4 mile, 10 Mar 2019

Nystagmus Network

We provide support and fund research to for everyone affected by nystagmus.

Charity Registration No. 1180450

Story

Thanks for taking the time to visit my JustGiving page.

Just over a year ago our 2nd beautiful daughter, Amie, was born. In the very early days, we thought Amie was actually blind. As the year went on, after many visits to specialists and many sleepless nights, Amies vision appeared to be improving slightly. 

Amie was finally diagnosed with a genetic eye condition. A symptom of this condition is nystagmus. Nystagmus causes the eyes to wobble and means that Amie has difficulty focusing on things and has issues with depth perception.  Amie has not let any of this stop her so far and is a very inquisitive, curious and extremely happy little girl. 

We are fundraising for Nystagmus Network to help them continue with the support and research that they provide for families like us. We hope you can help. 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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