Thanks for taking the time to visit my JustGiving page.
Thomas has a twin brother Patrick who, nine years ago was diagnosed with the severest form of Spinal Muscular Atrophy (Type 1). Patrick's disability means that he cannot walk, or lift his arms to scratch his nose, or sit unsupported, or roll over in bed. When he was 5 years old he was given a "snap dragon" wheelchair (made by Dragon Mobility). It changed his life completely and he has used that chair everyday for the last 5 years. It has meant that, just like Thomas, he could attend his local school and make friends and follow his dreams. Now at 10 years old Patrick is too big for his chair and needs a new one. Without it his quality of life will be severely reduced. The cost of this type of chair is over £20,000.
Thomas Knows exactly what Patrick's chair means to his quality of life and he has seen how the lives of others in Patrick's position have also been improved. He was determined to do something to try and raise the money needed for a new chair.
On 14th May he will stay silent for 24 hours (no easy feat). It's a school day, but he has the support of his school. He has football training on that day and for once his football coach has agreed to let him stay completely silent.
This fund raising idea is totally Thomas' idea and is typical of his generous spirit.
Please note: HMRC rules do not allow tax refund under gift aid if the donor insists it should benefit a named individual so please bear this in mind when making your donation. Gift-aided Donations made via this page to the Turbo Trust will go into a fund at the discretion of the trustees. It is the trustees' aim to provide enough money for each beneficiary to order the equipment they need. And the trustees do take note of in whose name funds have been raised when they make grant decisions. The more gift-aided donations received here the more funds the trustees have to help Patrick and others like him. If you only want to help Patrick and cannot therefore claim gift aid, please contact his family directly, rather than donating here, as justgiving fees may reduce the value of your gift.
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