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Paul Weaver avatar
Paul Weaver

Paul's London Triathlon page

participating in the London Triathlon for The Butterfly AVM Charity Limited because they fundraise for an amazing cause

193 %
£1,932.50
raised of £1,000 target
by 82 supporters
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  • Event: Virgin London Triathlon, 27 Jul 2013 to 28 Jul 2013

The Butterfly AVM Charity Limited

We fund medical research & raise awareness to improve the lives of AVM sufferers

Charity Registration No. 1149170

Story

Thanks for taking the time to visit my JustGiving page.

I'm raising money for a charity close to my heart called The Butterfly AVM Charity. It's a family run charity that raises much needed funs for specific research into peripheral, brain & extremity AVMs (Arteriovenous Malformations) with the aim to improve treatments and find a cure.

The charity was set up fund research into AVM's, a condition that affects only 3 in 1 million people and which a good friend of mine, Nicole Christou, 8, suffers from. Due to the rareness of the condition very little is known about AVM's, and there is no cure. The charity is working in partnership with Great Ormand Street Hospital to research and develop specific treatments to improve quality of life for AVM sufferers around the world, and to one day find a cure.

I chose the triathlon because as well as being an intense test of physical and mental strength (am I making it sound challenging enough?) I also can't swim / am scared of swimming in open water. So it's both personally a big challenge and a really worthwhile cause.

Please help me fundraise. Thanks!

Did I mention the triathlon is OLYMPIC DISTANCE - 1.5km swim in the Sepentine, 40km cycle and 10km run.

For more info: 

http://www.butterflyavmcharity.org.uk/

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