Your friends are fundraising. Don't miss out, opt in.

120 %
£12,065
raised of £10,000 target
by 202 supporters
Donate
Peter Griffith avatar
Peter Griffith

Peter's 50 years young - Climbing Kilimanjaro & Running The Marathon!

In memory of or daughters Misha & Natalie for Helen & Douglas House because of the amazing support that they gave our family

120 %
£12,065
raised of £10,000 target
by 202 supporters
Donate

Helen & Douglas House

We provide care at the hospice and at home to children in the Thames Valley region

Charity Registration No. 1085951

Story

In January 2000, our eldest daughter Misha, then just 4 years old, was diagnosed with Late Infantile Batten Disease, a neurological degenerative illness. For months before, she had been having seizures, had trouble walking, had started to lose her speech & we were at our wits end as parents.

The diagnosis came as a huge blow, as the condition is always currently fatal. An even bigger blow was to come weeks later. As it is a genetic condition, we had to have our other two daughters tested. Natalie was just 2 at the time & our third daughter Sophie had just been born, days earlier.

To our absolute horror, Natalie was also diagnosed with the condition, despite the fact she was showing no signs yet - thankfully baby Sophie was clear.

In April 2000, feeling isolated & alone, we were introduced to Helen & Douglas House Children's & Young Adult's Hospice in Oxford. The team at HDH showed nothing but love, acceptance & compassion to the whole family & it became a place of santuary when our world was changing daily.

Natalie started to show symptoms in 2001 & by the end of that year was also largely wheelchair bound. We spent many days at HDH taking breaks from our busy lives & the 24/7 care that the girls needed - both lost all their skills & eventually became largely immobile, blind & unable to feed themselves.

The team at HDH held our hand through the darkest days. Misha died in November 2002 just after her 7th birthday & Natalie in December 2003, just before she would have turned 6. We will forever be grateful to all that HDH did & continue to do in supporting us as a family.

Rachel my wife now works for the charity as a care provider, showing the same love & compassion that we received to countless other families.

In April 2016 I plan to run the London Marathon, with the Kilimanjaro Climb happening in September 2016. As Rach, Sophie & Zak will support me practically as a family as I do these challenges, I hope you will dig deep & support the charity financially by sponsoring me & sharing my page, thank you.   

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

Photos

2

Supporters

202