We are lucky enough that you have travelled to France to share in our special day/weekend and so we have no gift list as such. However, if you would still like to give us a gift then it would mean the world to us if you made a donation to the research into Aniridia being carried out at Moorfields Eye Hospital. Our nephew, Finlay Butler, was diagnosed with this rare eye condition when he was just 6 weeks old back in November. Aniridia literally means “without iris” (http://www.rnib.org.uk/eye-health-eye-conditions-z-eye-conditions/aniridia), and will leave Finlay partially sighted/blind.

Children with Aniridia typically have some level of vision, for example Finlay can see at 6m what the rest of us can see at 130m. Unfortunately though this can degenerate further during childhood as Aniridia may also develop other eye conditions such as Nystagmus, Glaucoma, Cataracts, Keratopathy to name a few. 

Given the rare nature of Aniridia (~1 in 50,000) there are still a number of unanswered questions as to why and how some children with Aniridia develop further eye diseases and others do not and most importantly what can be done to combat this. The world renowned Moorfields Eye Hospital is partaking in a number of research studies, but requires further funding to see these through to fruition.

We thank you in advance for your support to this cause on our happy day.

Rachel & Ed x