Niemann-Pick UK (NPUK) is a charitable organisation dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases. 

Niemann-Pick diseases are a group of rare and devastating inherited lysosomal storage disorders that can affect both children and adults. 

NPUK raise much needed awareness, provide practical and emotional support, advice and information and facilitate research into potential therapies.We are a small charity with less than five hundred members, the work we do is funded entirely through fundraising activities and successful grant applications. Our strength, therefore, comes from the dedication of our much valued families, members, benefactors and volunteers who work with tremendous effort and loyalty in support of the charity.