Our son James died aged 8 days. Although it was not the cause of his death, he had a diagnosis of Rubinstein Taybi Syndrome. He would have suffered severe physical and learning disabilities. This charity has always given me a way to try to know him.
for The Rubinstein Taybi Support Group
With lots of friends, we are running a Tough Mudde for Rubinstein-Taybi Syndrome Support Group because our son was diagnosed with the syndrome
We support families affected by RTS to make sure they know they are not alone.
Charity Registration No. 1147765