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Rick Sullivan avatar
Rick Sullivan

RUNNING LONDON MARATHON FOR ALS RESEARCH & ENABLE LIFE EXTENDING RESULTS

Please donate today through my fundraising page for Brain Research UK because of this charity's important research in ALS

100 %
$4,000.00
raised of $4,000 target
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  • Event: London Marathon 2019, 28 Apr 2019

Brain Research UK London marathon Team 2019

Welcome to our London marathon team page!

Charity Registration No. 1137560

Story

NO DONATION IS TOO SMALL.  PLEASE SELECT DONATE ON THE UPPER RIGHT PART OF THIS PAGE TO HELP ACCELERATE RESULTS THROUGH BRAIN RESEARCH UK.

My journey through the World Marathon Majors, a series consisting of 6 of the largest and most renowned marathons in the world, and bringing attention and hopefully funds with your support to some very important research.

#5 of 6:  London Marathon 2019

On April 28, 2019, I will run the London Marathon as one of 100 runners and one of the few international runners on team Brain Research UK.  This will be my 5th of 6 of the Abbott World Marathon Majors that represent the most iconic and some of the largest marathons in the world.  My WMM journey has included competing in NYC, Chicago, Berlin, actively training for Tokyo (March 3rd), and if my race results are strong enough, then competing and concluding my Six Star at Boston Marathon 2020.

I sought out this charity for one reason:  They research and attempt to develop life extending and enriching solutions to Motor Neurone Disease (MND) and specifically ALS. 

MND / ALS is a fatal, rapidly progressing neurological disease. It affects the muscles that control movement, robbing patients of their ability to walk, talk and eventually their ability to swallow and breathe.  It has no cure.  While the average survival time is 3 years, about 20% of people with ALS live 5 years, 10% will survive 10 years and 5% will live 20 years or more. 

Military veterans, particularly those deployed during the Gulf War, are approximately twice as likely to develop ALS.  While the stats may make this disease seem distant from those of us, I’ve known two childhood friends who have been diagnosed with this devastating disease, one of whom was diagnosed just this September, who is just beginning to share with family, loved ones and friends.

Why Brain Research UK (BRUK)? 

Dr. Linda Greensmith has been leading MND research at BRUK since 1999.  There is some evidence that people with ALS are living longer, at least partially due to clinical management interventions, and possibly other compounds and drugs under investigation.  The team at BRUK developed a drug (Arimoclomol) with results from early stage trials reported in December 2016 showing that “the drug appeared to show a slowing of functional decline”.  It is currently in phase 3 trials in the US.

Please donate today to accelerate the progress of neurological research and improve the lives of those affected.  Even small donations make a difference.

Thanks so much for your support.  I run for those who can’t run.  Rick.


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