The first signs of Myasthenia Gravis can be droopy eyelids and double vision. You may also feel generally tired and weak in the neck, arms and legs.
Many sufferers find their faces are affected and talking, smiling or chewing may be difficult. If untreated, swallowing and breathing can become progressively more difficult.
Some people find that talking for any length of time is difficult and their speech may sound different when they have been talking a lot.
After a good night’s sleep they may feel ok but as the day wears on, the weakness gets worse and they need to rest. The more they try to do something like walking or talking the harder it gets.
Myasthenia Gravis is an autoimmune condition. Antibodies which normally fight infections go wrong and attack the communication system between the brain and the movement muscles causing them to feel week.
I have been a sufferer of Myasthenia Gravis since I was 16 . Over the years there has been more and more understanding of the condition. The treatments have also progressed and improved .
In my case the symptoms seem only to present in the form of ocular myasthenia and this has mercifully not progressed to the more generalised and debilitating form of Myasthenia Gravis .
Myaware is the name for the Myasthenia Gravis Association.The MGA has been around since May 1976. They support people with myasthenia and their families, increase public and medical awareness of the condition and raise funds for research and for support staff. Members of Myaware are able access free benefits and a counselling service. Myaware get no Government support for their work and rely entirely on voluntary fundraising.
Thank you for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they will never sell them on or send unwanted emails. Once you donate, they will send your money directly to the charity. So it is the most efficient way to donate – saving time and cutting costs for the charity.