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Sarah Grudzien

Sarah's Page

Running the Great Scottish Run for FIBROUS DYSPLASIA SUPPORT SOCIETY because we need funds to support this rare charity

152 %
£380.00
raised of £250 target
by 21 supporters
Donate
  • Event: 2018 Bank of Scotland Great Scottish Half Marathon, 30 Sep 2018

FIBROUS DYSPLASIA SUPPORT SOCIETY

We support sufferers of bone disease to help improve lives and understanding

Charity Registration No. N/A

Story

We are raising money for the Fibrous Dysplasia Support Society and Rudy (Rare Disease Researchers) to help fund research into an extremely rare disease.

Fibrous Dysplasia affects only 1 in 15-30,000 but at a very young age Hollie was diagnosed. Over the past couple of years this has proved to be a difficult journey, with Hollie sadly losing her sight in one of her eyes. However, thanks to the ENT Team at Birmingham Children's Hospital we managed to save the sight in her other eye which was also affected although this came with a number of intense operations for Hollie. We are still not out the woods yet and face challenging times ahead with more surgeries in time.

Last year we raised a huge amount which allowed the charity to fly over specialist doctors and surgeons from America to the annual meeting, which provided much more knowledge and insight to this unknown disease.

This year I am by myself and despite having one half marathon under my belt I still am not a very motivated runner so I really am working for these donations! A massive thank you for anything you can donate, it is so so appreciated!!

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwated emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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