As most of you know Ellie is 6 and has Congenital Myasthenia (CMS) sometimes known as the Rag Doll disease. This not only affects her ability to walk,run and play at times but also means she has a tracheostomy in order to help with life support and resusitation when she has breathing difficulties ,which have led to cardiac arrests in the past.....we didnt think she would reach this age!
Ellie is a happy and loving child who loves nothing more than singing to Hannah Montana! Tracey and I ran the GNR last year and it was our second time and we raised over £500...we would like to raise more and Gary is helping us out! The aim is a 2 hour GNR!!
MGA is a very small charity and donations really help to fund research into CMS...we may not get a cure for Ellie but we may get a cure for other children like her.
Please give what you can and support us in our big challenge!!
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So please dig deep and donate now.