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Sutton Smith

Sutton Strong 2022 FAST CAN Cure Angelman Now!

Fundraising for Foundation for Angelman Syndrome Therapeutics
US$48,148
raised
by 22 supporters
Donations cannot currently be made to this page
Event: 2022 FAST CAN Campaign, from 1 February 2022 to 31 December 2022
Better days are coming! Together we CAN cure Angelman syndrome. Your donation will help fund critical research to accelerate the therapeutic pipeline that will benefit all individuals living with Angelman syndrome, regardless of age or genotype.

Story

On September 29, 2020 Sutton was diagnosed with Angelman Syndrome (AS). AS affects people in many different ways. The most common symptoms include seizures, difficulty sleeping, nonverbal, GI issues, and severe developmental delays. Sutton is currently in numerous therapies including physical therapy, occupational therapy, and speech therapy. Sutton has continued to improve, reaching “inchstones” and amazing us every step of the way. 

This fundraising page is the foundation to help Sutton reach MILESTONES. All proceeds raised on Sutton’s behalf go directly to FAST and the search for a cure. In late 2020, one of the main FAST funded clinical trials for gene therapy in AS showed incredible hope. The trial is still in its early phases, however in a few short months the treatment helped Angel’s learn to talk, swim, walk, and improve sleep for the first time ever. One patient spoke11 words after speaking none! 

In 2008, FAST was launched by a dedicated AS parent to find a cure.  In just 14 years, FAST has raised and awarded over 25 million dollars to find a cure for AS.  Currently there are 23 AS therapeutic programs in the pipeline toward human clinical trials, 20 FAST laboratories funded to understand the etiology and identify treatment options for AS, and 9 gene therapy/disease modification based programs funded to support drug development options for AS.

The trials and research mentioned above give us immense hope.  This hope makes us believe Sutton will be CRUSHING milestones which seem so far away. 

Thank you for your continued support and love for our Angel Sutton!🤍

Together we CAN cure Angelman syndrome. FAST researchers know exactly what causes Angelman syndrome (AS) and have already cured it in the laboratory. Much of this pioneering, critical research was funded, one dollar at a time, by members of our FAST community- people like you! Today, this research has led to the announcement of several revolutionary clinical trials that hold the potential to treat, and ultimately cure, this rare disorder.Your donation to my page helps fund critical research and ensures all promising treatments reach every individual with AS. Please help us support critical AS research by clicking the Give Now button and donating whatever you are able to. Every single dollar is appreciated and gets us closer to our goal! The more people that know about FAST, the greater the impact, so please also spread the word by sharing this page with your contacts. Please help me reach this goal. Thank you in advance for your generosity.

About the campaign

Better days are coming! Together we CAN cure Angelman syndrome. Your donation will help fund critical research to accelerate the therapeutic pipeline that will benefit all individuals living with Angelman syndrome, regardless of age or genotype.

About the charity

FAST (Foundation for Angelman Syndrome Therapeutics) is an organization of families and professionals dedicated to finding a cure for Angelman syndrome through the funding of an aggressive research agenda, education, and advocacy.

Donation summary

Total raised
US$48,147.86
Online donations
US$2,315.00
Offline donations
US$45,832.86

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