Liam Clark
Xmas Special: Santas SoundSystem (4-8pm) page
Fundraising for Spina Bifida Hydrocephalus Scotland
Story
As a beatboxer, I got involved in SBH Scotlands Got Talent Online Event. I had never known much about the charity or Spina Bifida Hydrocephalus(SBH) as a condition, which some babies are born with. After a quick google search I was shocked to learn what it actually was and how it is such a difficult condition to live with, for the person with SBH and the families who cater to the needs of the individuals who suffer from it.
As a human being I think it's important to share in the pain of those who suffer from any diseases, disabilities and injuries that can cause severe physical and emotional discomfort. It's never easy going through life and we never know what is around the corner, guaranteed. That is why I feel it's important to be grateful for the simple pleasures life can bring and help others to achieve their goals, and that will bring around positive change. Especially to those who need it the most.
If your unfamiliar with the condition, below is taken from the NHS Website.
Spina bifida is when a baby's spine and spinal cord does not develop properly in the womb, causing a gap in the spine.
Spina bifida is a type of neural tube defect. The neural tube is the structure that eventually develops into the baby's brain and spinal cord.
The neural tube starts to form in early pregnancy and closes about 4 weeks after conception.
In spina bifida, part of the neural tube does not develop or close properly, leading to defects in the spinal cord and bones of the spine (vertebrae).
It's not known what causes spina bifida, but a lack of folic acid before and in the early stages of pregnancy is a significant risk factor.
Types of spina bifida
There are several different types of spina bifida, including:
- myelomeningocele – the most severe type of spina bifida; the baby's spinal canal remains open along several vertebrae in the back, allowing the spinal cord and protective membranes around it to push out and form a sac in the baby's back
- meningocele – another serious type of spina bifida where the protective membranes around the spinal cord (meninges) push out through the spine; the spinal cord usually develops normally so surgery can often be used to remove the membranes without damaging the nerves
- spina bifida occulta – the most common and mildest type of spina bifida; 1 or more vertebrae does not form properly, but the gap in the spine is very small; spina bifida occulta does not usually cause any problems and most people are unaware they have it
I'm setting the target at £500, and for good reason. This amount can help one young adult with Spina Bifida pay for their annual Health Check Clinics for 1 year. This is the target and we hope to see some of use tuning in and enjoying the tunes
Merry Christmas
Ya filthy animals. (Home alone reference for anyone that's not seen home alone).
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