If you know me, you'll probably know that I like riding a bike. In fact, I love riding a bike. One of the things I love most when riding is feeling the sun on my face as I pedal along, and that's something I would miss if I couldn't do it.
Xeroderma Pigmentosum, or XP for short, is an extremely rare genetic skin condition for which there is no cure. It affects less than 100 people in the UK and is characterised by an extreme sensitivity to ultraviolet (UV) rays. Unless patients with XP are protected from UV, their skin and eyes will become severely damaged which leads to cancer - people with XP are 1000 times more likely to develop skin cancer.
On Sunday 30th July I'm riding 100 miles round London and Surrey (including up Box Hill and Leith Hill) to raise money for the wonderful XP Support group.
The charity work to further the research into the condition and enhance the lives of those with the condition by paying for life-saving equipment such as UV protective films for windows and UV protective clothing. This includes running a night time retreat for patients and their families (Owl Patrol), providing UV meters to all newly diagnosed patients and sending visor film to all patients throughout the UK.
The XP Support Group is a small charity, run entirely by volunteers. They work hard to be sure that funds raised go directly to improving the lives of people with XP. Anything that you can spare will make a big difference and I would be so grateful for any donations.
If you'd like to come and see me sweating into a thin layer of lycra and some suncream, there are lots of lovely places to watch from - details are at https://www.prudentialridelondon.co.uk/events/100/spectator-info/
I think that we can all agree that a moustache isn't a good look for me and frankly I couldn't grow one if I tried.
I can ride a bike though (hopefully 100 miles!).
Big love - hope to see you in the hills of Surrey.