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Tonia Hymers

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Running 5K dressed as Santa on a December Sunday for BBS UK because they need our support!

220 %
£550.00
raised of £250 target
by 28 supporters
Donate
  • Team members: Stefan Crocker, Angela Scudder and Amy Clapp
  • Event: Santa Run 2018 - Victoria Park, London, 02 Dec 2018

BBS UK

BBS UK is a charity providing support and information for those with Bardet-Biedl Syndrome, their parents/carers. BBS UK produces information leaflets, newsletters, a family conference, family days and activity weekends. Further information and contact details are available at www.lmbbs.org.uk

Charity Registration No. 1027384

Story

Thanks for taking the time to visit my JustGiving page.

Bardet-Biedl Syndrome (BBS) is rare.  Living with BBS can be tough and isolating.  Symptoms include sight loss, obesity and emotional and learning difficulties, among many other symptoms. 

BBS UK are a fantastic small charity working hard to support those living with BBS.  In addition to providing support and information, they organise events and activities to reduce isolation and provide social opportunities.  Growing up with BBS is particularly difficult and young people benefit hugely from attending the BBS UK Activity Weekend where they have the chance to meet other youngsters coping with the challenges the syndrome and life can bring.

BBS UK need our support to be able to subsidise this invaluable weekend, so more families can benefit. I would love to take on an epic and demanding challenge for this incredible group of people, and one day I will... for now though, the Santa Run will have to do...

There will be an early Sunday morning alarm... it will be cold....I will be dressed as Santa Claus... I will run 5 kilometres... Please, please dig deep and help me make a difference to a fantastic group of young people.  They really deserve our help. Thank you!

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

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