Just before Christmas our very good friends Kevin and Clare Blaydon-Ellis found out that their son, Harrison, was diagnosed with Duchenne Muscular Dystrophy.
Duchenne muscular dystrophy (DMD) is the most common fatal genetic disease diagnosed in childhood. The disease almost always affect boys, and they tend to be diagnosed before the age of 5. Duchenne muscular dystrophy is classified as a rare disease. There are around 2,500 patients in the UK and an estimated 300,000 sufferers worldwide.
On the 5th May 2019 nine of us (mostly from Romford) are running the Tough Mudder London West. Hills, mud, water, electricity, barbed wire, half pipes and ten foot walls. We want to to raise money and awareness for Duchenne UK. Please give all you can.
Duchenne UK is a highly focused, ambitious and lean charity with a clear vision: to fund and accelerate treatments and a cure for Duchenne muscular dystrophy (DMD). DMD is a devastating muscle wasting disease and is the most common genetic killer of children worldwide. There is no treatment or cure. Children will be totally paralysed by their teens and won’t live beyond their 20s. But thanks to recent breakthroughs, we believe we can save them. We aim to eradicate it in 10 years: TO END DUCHENNE IN TEN. www.duchenneuk.org