As some of you may or may not know, Vaara was our Rainbow baby after we lost our first daughter Amaari in August 2011. We were over the moon when she was born, she was perfect and we couldn’t be happier! Vaara was developing and doing all the things that a normal baby would do until she was around 6 months when she stared having seizures. She was diagnosed as having Infantile spasms a form of epilepsy and was having up to 10 seizures a day. The seizures took nearly 6 months to control using various drugs and by this time, they had taken a real toll on her little body. She lost all the skills she had learnt and was unable to learn anything new. The last few years have been tough for us as parents and at times heart breaking to see our little girl go through so much. She is now a happy little toddler and although has developmental delay and unable to do the things a child of her age would do, is learning new things every day. We are so grateful to all the consultants, doctors and therapists that have looked after and worked with Vaara over the last few years, but especially Smallsteps, a charity that Vaara receives therapy from on a weekly basis. We are so lucky to have a charity like Smallsteps on our doorstep that has really helped Vaara in so many ways since she started there last year. For every child that attends a session, it approximately costs £150 and they need to raise around £360,000 a year to keep providing this much needed support to children like Vaara and their parents and carers. Please give generously to this amazing cause.
For more information about Smallsteps and the fab work they do visit www.smallsteps.org.uk