Your friends are fundraising. Don't miss out, opt in.

81 %
£487.64
raised of £600 target
by 22 supporters
Donate
Wendy Russell avatar
Wendy Russell

Where is Wendy Running!

Fundraising for Ehlers-Danlos Support UK

81 %
£487.64
raised of £600 target
by 22 supporters
Donate
  • Event: Ragnar White Cliffs 2018, 22 Sep 2018 to 23 Sep 2018

Ehlers-Danlos Support UK

We educate, inform and raise awareness to support those living with Ehlers-Danlos

Charity Registration No. 1157027

Story

  • Over the next year I am planning on running a race each month!! 
  • So far= 
  • 14th April Brighton Marathon Weekend 10K
  • 11th May Dark Star 7k
  • 30th June- trail half marathon
  • 14th July Beat the Tide 10k
  • 25th Aug Arundel Castle 10k
  • 21st & 22nd Sept Ragnar Run weekend

I am running for a charity close to me... " I am running because they cant!!!" Everyday people with this condition are in huge amounts of pain and have constantly fatigued. Other issues can be from osteoarthritis to thin blood vessels.

Many members of my family have this condition. You never knows what's around the corner with this illness so just have to take it one day at a time, and live for that moment.

EDS UK is charity who supports those who suffer from Ehler-Danlos syndrome while raising awareness for the condition. This is a genetic and hereditary disorder which affects the connective tissue, to put it simply, the glue in your body isn't made correctly. This comes with a number of other conditions and also things such as hypermobile joints and, chronic and constant pain. EDS is a lifelong condition, and sometimes this life is cut short due to the complications EDS can bring! 

I am hoping to raise money which will go towards supporting patients with EDS, raising awareness of invisible illnesses and funding research for genetic screening tests. Thank you for your time to read this, if you would like to know more about EDS, you can read about it here: http://www.ehlers-danlos.org/

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Photos

4
  • +2

Supporters

22