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Wilma Lawrie

WILMA'S THOUSAND MILES FOR THE BBS

50/50 done, so decided to ‘Walk’ 1,000 miles for Brittle Bone Society because the BBS changes the lives of people living with OI

81 %
£2,448.16
raised of £3,000 target
by 83 supporters
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Brittle Bone Society

We help people with Osteogenesis Imperfecta to be independent and feel less isolated

Charity Registration No. 272100 in England and Wales SC010951 in Scotland

Story

Thanks for taking the time to visit my JustGiving page and follow my fundraising and awareness raising attempts for the Brittle Bone Society. Sadly, the text giving option has been discontinued but you can donate by clicking the JustGiving link on this page and using a debit or credit card or by sending a donation directly to the Brittle Bone Society in Dundee. If you say it’s to count towards my ‘Walks’ total, that would give a more accurate figure. 

To find out more about the 50 Walks I completed between June 2017 and August 2018 and the BBS, see more photos and videos, suggest Walks or get in touch, 'Like' and 'Follow' my dedicated Facebook page, now renamed 

Wilma's Thousand Miles for the Brittle Bone Society

As it’s now early in September 2019, I’ve been totting up the miles I’ve done since I started my 50 Walks and Witters in June 2017 and upped to One Thousand Miles after the 50th Conference last year. Taking into account all the miles from the first 50 then adding all the walks I’ve done since with family, friends plus the daily walks HDL and I do together, I realise I’ve just gone over my 1,000 mile total target - apologies for the lack of fanfare. 🎺 

As the annual BBS Conference is in Reading next weekend from 13-15 September 2019, I’m pleased to announce that my last official mile will be there in the grounds of the Conference Venue. Thank you to everyone who has kept me going over the last 27 months, donated to my JustGiving Page or directly to the Brittle Bone Society and learned more about osteogenesis imperfecta. My aim was partly to raise as much as I could for the Brittle Bone Society but also, importantly, to raise awareness of OI and the Brittle Bone Society. I hope you feel I’ve realised my aims. At times, it was very hard and I didn’t think I’d get there but, here we are, with 5 days to go until Conference and the Wishbone Warriors reforming to take part in a variation of our Eggheads quiz appearance on BBC2 in February this year but under the Chairmanship of Barry Simmons (my opposing Egghead) this time, next weekend will be the right time to bring my formal Walks to a close. 

Thank you again and, if you’d like to, please share my JustGiving details to spread the BBS and OI word still further. Best wishes Wilma Xx

Having ‘Walked and Wittered’ 232 miles over the 50 different Walks from 24 June 2017 to 18 August 2018, I’d been thinking about what challenge to set myself next. After much thought and wanting to do something that would enable me to use the Tilite Wheelchair and SmartDrive that started the whole 50 Walks and Witters  off but also to lengthen the distance and terrain I can access by using my new Batec Electric handcycle, share the great outdoors that I’ve rediscovered with others and to build on the momentum created by the 50 Walks so far I decided to do ‘Wilma’s One Thousand Miles for the Brittle Bone Society’. The exciting, life changing news of 2019 is that I now have my assistance dog, known on social media as HDL, who came with me on my Walks from mid February this year onwards.

2018 saw the Brittle Bone Society, whose head office is in Dundee, celebrate 50 glorious years. Whilst I couldn’t reach to the heights of my nephew, Iain Lawrie, and take part in a marathon for the BBS, Yvonne Grant, whose amazing mother, Margaret, set up the Brittle Bone Society in 1968, gave me the idea to do 50 'walks' between June 2017 and August 2018 to celebrate the fiftieth anniversary. In the late 60s my parents saw a letter Margaret wrote to the Sunday Post asking if there was anyone else out there with brittle bones (osteogenesis imperfecta), 10 people replied with 4 families meeting up a few months later and the rest is history. 

Brittle Bone Society

The walks that I choose are personal to me, suggested by family, friends or even you and are suitable for wheelchair users, although not always on flat ground - Edinburgh is quite a hilly place after all. They will all be dog-friendly too as my assistance dog will be doing most of them with me.

As my family and friends have learned over the years, the Brittle Bone Society does incredible work to further research, raise awareness, support people living with OI and so much more. Every time I have phoned the office over many years, there is always someone there willing to stop whatever they are doing to 'listen', to give advice, to support, to encourage - this is invaluable, unquantifiable and makes whatever the issue has been seem less daunting to deal with. Even just a little help at the correct time means that people of all ages living with OI can lead more independent lives and make a difference to their lives and others at the same time. OI is a rare condition (around 1:15,000 families in the UK live with OI) which affects people in many different ways - it is caused by a collagen defect and as well as fracturing bones, people with OI often have muscle weakness, early hearing loss, fatigue, joint laxity, curved bones, scoliosis, blue sclerae, dentinogenesis imperfecta (brittle teeth), respiratory difficulties, easy bruising and short stature amongst other medical issues. In addition to having had over 300 cracks and fractures since I was diagnosed aged 2, OI also causes me to have spontaneous injuries to muscles, tendons, ligaments etc from little or no trauma.

Early in 2016, the BBS got in touch with me as they knew I was really struggling to push or even use my NHS wheelchair due to increasing problems with my shoulders (on top of the usual frequent cracks and fractures elsewhere) and offered to approach trusts to enable me to get a suitable wheelchair and add-ons to regain some of the independence I had lost. A few months later I became the proud owner of an amazing very lightweight titanium Tilite wheelchair and SmartDrive powerassist, costing over £8,500 in total, which meant I could contemplate doing 50 walks for the BBS. In the time I've had the chair, I've enjoyed its benefits in so many ways and I'd love it if you can join me on some of the walks to help celebrate the BBS and assist me to try to raise as much as I can to help make a real difference to the lives of other people in the UK living with OI. 

BBS Wheelchair Fundraising video

For example, the annual BBS weekend conference may be the only time that families and individuals can ever have a 'break' away from home because the team work hard with members in different parts of the country to identify places that will be as barrier-free as possible. This means that we can all benefit from learning about medical developments; see real specialists in OI, perhaps for the only time in our lives; meet up with friends old and new; spend time really relaxing as everyone just 'gets what it's like', without explanations, to live with OI so we can ALL feel safe - and if a fracture occurs, they've even thought of that. For many of us, this is the only time in a year that we can truly relax, free from the unexpected (and expected) negative attitudes and experiences of everyday life. Is 3 days out of 365 too much to ask?

UPDATE October 2018: Now that I’ve completed ‘Wilma’s 50 Walks and Witters for the Brittle Bone Society’ I’ll try to do some of the Walks that have also been suggested by others - The Royal Mile; Devilla Forest trail; The Water of Leith; Loch Katrine; Fort William and/or Oban area; Kessock, Dornoch and Cromarty Bridges; Skye Bridge; Kinross to Loch Leven Larder (return=8 miles or one way=4 miles); Harlaw Reservoir/Red Moss Peat Bog, Balerno and so many more out there waiting to be attempted! Add a comment on the Walks FB page if you’ve got other suggestions of ones you’d like to do with me. 

Below are the original 50 Walks that got me started on the road to a thousand miles:
 1  Dundee: 3 miles around Camperdown Park - 24 June [COMPLETED]
 2  Dundee: Tay Bridge both ways - 15 July [COMPLETED]
 3  The Blair Atholl Watermill to Blair Castle  - 20 July [COMPLETED]
 4  Balmoral Castle Grounds - 22 July [COMPLETED]
 5  Blinking Eye (Millennium) Bridge to the Sage, Gateshead - 10 August [COMPLETED] 
6  Dundee Wee Wander Kiltwalk as part of 'Team Brittle Warriors' - 20 August [COMPLETED]
 7  The Royal Botanic Gardens, Edinburgh - 31 August [COMPLETED]
 8  Queensferry Crossing (team of 4) - 2 September Team WBBS50 wore matching 'Walks and Witters' hoodies. Look out for photos on the dedicated Facebook page [COMPLETED]
 9  Pitlochry town and river wander- 8 September [COMPLETED]
10 Princes Street Gardens 12 September. [COMPLETED]
11 Glamis Castle - 21 September [COMPLETED]
12  The grounds of Taymouth Castle, Kenmore by the River Tay as a tribute to my dear friend, Rosemarie Kasper, actively involved in the USA OI Foundation - 30 September [COMPLETED]
13  Loch an Eilein, 21 October [COMPLETED]
14   17 November Dalkeith Country Park [COMPLETED]
15  Cycle path route - North Edinburgh 18 November [COMPLETED]
16   Boxing Day Wander by The Polofields, Redford Wood and the Braid Burn - [COMPLETED]
17  New Year’s Day Walk, Bonaly to Torduff Reservoir - Welcome to 2018 and the 50th year of the Brittle Bone Society. [COMPLETED]
18 Walk by the Clyde in Glasgow - 7 January 2018 [COMPLETED]
19  Part of The Union Canal Edinburgh from Longstone  - 12 January [COMPLETED]
20  Kelvingrove Gallery and Park - 15 February [COMPLETED]
21  High to low...Walk from upper Bonaly down to Colinton village including Spylaw Park, part of the Water of Leith, and back up to Bonaly Country Park - 22 February [COMPLETED]
22  Lauriston Castle Grounds - 20 March [COMPLETED]
23  Highland Wildlife Park - 3 April [COMPLETED]
24  Alloa - 5 April [COMPLETED]
25  Wilton Lodge Park, Hawick, celebrating Jan and Saffron’s birthdays! - 16 April [COMPLETED]
26  Roam round Ratho, home to Lawrie ancestors...and one of the first places I canoed as a teenager!  - 19 April [COMPLETED]
27  Crathie Church 9 mile loop towards Invergelder climbing around, up and down Creag a Ghobhain, Craig Gowan to Easter Balmoral and back to the church - to celebrate Wishbone weekend. 5 May [COMPLETED]
28  Wishbone Day Walk Blair Atholl village to Glen Tilt car park - 6 May [COMPLETED]
29   Mugdock Country Park - 7 May [COMPLETED]
30  Milngavie Town Hall to ¾ mile along the West Highland Way welcoming the incredible Medics on the March who walked the entire WHW in only 4 days - 7 May [COMPLETED]
31  Crossing the Forth Road Bridge - 13 May [COMPLETED]
32  1918-2018 Processions Parade Edinburgh - 10 June [COMPLETED]
33  The Hermitage and Pinecone Viewpoint, Dunkeld - 7 July [PARTIALLY COMPLETED!] Unfortunately, I had to give up part of the way up to the Pinecone Viewpoint as it was too hot and I was concerned that the path was too steep but friend, Lesley almost made it. I will try it again later in the year with a few more people in case I run out of ‘steam’ .
34  Birnam and Dunkeld to the Hermitage with Graham (RSM Atholl Highlanders) and Sandra Jack - 10 July [COMPLETED]
35  A walk in 2 parts with Graham and Sandra along a very short accessible stretch of the Fife Coastal Path at Wormit then off to Balmarino Abbey and village to walk another part of the Path  - 12 July [COMPLETED]
36  Longniddrie-Haddington along the Old Railway - 18 July [COMPLETED]

37  The promenade from the River Almond at Cramond to Silverknowes and back - 19 July [COMPLETED]

38  Harestanes Countryside and Woodland Walk - 20 July [‘COMPLETED..as far as it could be. See Update below!]

39  The Kelpies and Helix Parkland -  21 July [COMPLETED]

40  Walk #40 Falkirk Wheel 2 canals circuit - 21 July [COMPLETED]
41  Warrington Centre - 26 July [COMPLETED]
42  River Ness and Caledonian Canal circuit or a different one in Inverness - 29 July [COMPLETED]
43  Blair Atholl to Killiecrankie - 1 August [COMPLETED]
44  Commonwealth Pool to Musselburgh via The Innocent Railway - 5 August [COMPLETED]
45  Ancestral Links: Suburb to City - 8 August [COMPLETED]
46  Culzean Castle and Country Park - 10 August [COMPLETED]
47  The Queen’ Drive round Arthur’s Seat, Edinburgh - 11 August [COMPLETED]
48  The Archerfield Estate - 15 August [COMPLETED]
49   The River Tay from Dundee to Invergowrie Nature Reserve - 17 August [COMPLETED]
50  18 August 3.15pm - Dundee Apex Hotel to BBS HQ and back. I’d like to invite anyone who has supported my Walks and Witters to join me on my last Walk. Anyone going to the BBS Conference can join me too. Others you could do are doing the return leg rom the BBS HQ in Guthrie Street down to the Apex Hotel, and/or perhaps across the Tay Bridge and back, and/or along the riverside to the Tay Railway Bridge returning by Discovery Quay and the stunning new V&A gallery, and/or around  the Victoria Dock. Get in touch to let me know if you’d like to join in. [COMPLETED!!!]

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