Looks like we're running into some trouble. You can try donating again, or reach out to our Customer Support team for help.
Madeleine Warren

Spring Wolf Run 2019 for SWAN UK

Fundraising for Genetic Alliance UK
£367
raised of £300 target
by 25 supporters
Donations cannot currently be made to this page
Genetic Alliance UK

Verified by JustGiving

RCN 1114195
We engage, support, research & campaign to improve policy & healthcare outcomes

Story

Welcome to my fundraising page! 

urge you all to take a look at the SWAN UK website and social media to see what a fantastic job they all do in raising awareness of families and young people who are affected by Syndromes Without A Name (SWAN). 

I chose this charity as I have seen and heard about the difference they have made to my close friend Lucia’s family. 

“SWAN UK have been a huge part of my families lives for the last few years, the support and advice they’ve given us along with friendly faces and really important experiences for my sister who without this charity would still be misunderstood by doctors and other medical professionals, for my mum this has been an important group to go to when she isn’t sure what to do next to help my sibling with her diagnosis.”

This is not only a hugely important fundraiser for me, but also for Lucia’s family, and other families going through the same events. 

Any donation would be greatly appreciated, and will make me run just that little bit faster around the insane 10K course next year! 

Useful websites:

https://www.undiagnosed.org.uk

https://thewolfrun.com/events/


About the charity

Genetic Alliance UK

Verified by JustGiving

RCN 1114195
We are a national alliance of over 220 charities and patient support groups. Together we advocate and campaign for the 3.5 million people in the UK with a rare, genetic or undiagnosed condition - improving diagnosis, care coordination and treatment options. We run Rare Disease UK and SWAN UK.

Donation summary

Total raised
£366.60
+ £65.00 Gift Aid
Online donations
£366.60
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.