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Around April last year I got ill with fevers above 40 degrees, uncontrollable shaking and passing out. After two weeks of being at home I went to get some blood tests done and then was told I needed to go straight to hospital.

I went to Whipps Cross Hospital and later on transferred to Barts, including a stint in intensive care. I was finally diagnosed with Haemophagocytic Lymphohistoctosis (HLH) brought on by the Epstein-Barr Virus (EBV).

HLH is a rare blood disorder mostly found in young children that affects immunity. It makes you have an over active immune system so when you're ill it doesn't get rid of your illness but attacks your body instead. 

It's treated a lot like Cancer and since being diagnosed I've received different treatments and therapies. Nearly a year later I'm slowly getting over the adverse effects of them, however doctors still haven't ruled out a bone marrow transplant.

I want to do this run because HLH is a rare disease that doesn't get as much recognition as other blood diseases. Speaking to a lot of doctors, nurses and GPs in my time in and out of hospital I found they hadn't even heard of it either and in my specific case my results had to be discussed with specialists around the world for their input on what the next stage in my treatment should be.

Any donation you have would be greatly appreciated because a lot more research is needed into this blood disease. Unlike a lot of other blood diseases funding for this is very limited.

My URL pretty much sums up how I feel about it.

Thank you.


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Raising money for

Histiocytosis UK

Histiocytosis UK

Charity Registration No. 1158789

Histiocytosis Research Trust has merged with Histiocytosis UK . The combined charity funds research into uncovering the causes of Langerhan's Cell Histiocytosis & Haemophagocytic Lymphohistiocytosis. Seeking early diagnosis, effective treatment and a cure as well as providing information support.

Raising money for

Run by Histiocytosis UK

Charity Registration No. 1158789

Donations 96

Your mum tells me what a very brave and remarkable young man you are. Well done for raising such a huge amount of money whilst battling your own struggles. Amazing.

Donation by Suzy Jacoby on 13/08/14

£20.00

+ £5.00 Gift Aid

Long time no see, keep up the good work, wishing you well x

Donation by Jan Nicholls & family on 19/07/14

£10.00

+ £2.50 Gift Aid

Well done Greg. Wishing you all the very best.

Donation by Love from all at number 46 on 27/06/14

£30.00

+ £7.50 Gift Aid

Sorry it's a bit late, but well done

Donation by Alan Palmer on 04/06/14

£25.00

+ £6.25 Gift Aid

Been meaning to do this for a while!! Sorry it's late! x

Donation by Dani on 03/06/14

All power to you Greg. Well done.

Donation by Wendy on 03/06/14

£25.00

+ £6.25 Gift Aid

What an achievement - well done!

Donation by Anonymous on 01/06/14

Well done Greg! Sorry this is late.

Donation by June on 31/05/14

£25.00

+ £6.25 Gift Aid

All the best Greg, thinking of you, Ali and Andrew W R x

Donation by Ali on 29/05/14

£20.00

+ £5.00 Gift Aid

Best wishes Greg

Donation by Robert on 28/05/14

£20.00

+ £5.00 Gift Aid

Donation by Alice on 28/05/14

£20.00

+ £5.00 Gift Aid

All the best with the 10k run.

Donation by Clyde W. on 28/05/14

£25.00

+ £6.25 Gift Aid

Congratulations on reaching your target ! Sorry this is late, but heard from your mum( who I work with) about your run.

Donation by Mary on 28/05/14

£20.00

+ £5.00 Gift Aid

Donation by Neil on 27/05/14

£10.00

Well done on finishing your run mate! Sorry about the late donation x

Donation by Andy Ha on 27/05/14

£10.00

+ £2.50 Gift Aid

Well done Gregory - such a good thing to do

Donation by Katrina on 26/05/14

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 26/05/14

Go Greg! Proud of youuuuuu xxx

Donation by Sumaya on 25/05/14

£20.00

Here ya go mane good luck

Donation by The mane guy on 25/05/14

£10.00

Good luck!

Donation by India on 25/05/14

£10.00

+ £2.50 Gift Aid

Go Greg! Good luck tomorrow xxx

Donation by Anonymous on 24/05/14

£10.00

+ £2.50 Gift Aid

Run like the wind

Donation by Jack on 24/05/14

£5.00

+ £1.25 Gift Aid

Donation by John Lindsey on 23/05/14

£50.00

+ £12.50 Gift Aid

Donation by Kieran on 23/05/14

£25.00

With Hugs xxxx

Donation by Francis on 22/05/14

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations£2,890.00
  • Offline donations£0.00
  • Text donations£20.00
  • Total raised£2,910.00
  • Gift Aid£676.25

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