Joanna Espin

Joanna's Challenges for Phoebe

Fundraising for The Phoebe Research Fund
£340
raised of £1,000 target
by 16 supporters
Donations cannot currently be made to this page
Participants: I
The Phoebe Research Fund

Verified by JustGiving

RCN 1163875
We Fund Research into Epidermolysis Bullosa to and cure this devastating skin disease

Story

Thanks for taking the time to visit another of my JustGiving pages, this is for donations to help Phoebe a beautiful child who deserves research into her particular strain of Epidermolysis Bullosa (RDEB).

This is a rare genetic inherited lifelong condition in which the skin is fragile and will blister and shear away with minimal friction and trauma.
The Blisters are not self-limiting and will enlarge unless lanced and drained. It also affects the internal skin.

Phoebe is a lovely happy go lucky child who deserves every penny that can be raised and the money raised goes direct to the research.

All the events I undertake are at my own cost and do not come from 'the pot' this is my commitment to the Charity, to Phoebe and her founder mum, Zoe. 

Thankyou, thankyou, thankyou. 


Now for the science bit...

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About the charity

The Phoebe Research Fund

Verified by JustGiving

RCN 1163875
Phoebe has Epidermolysis Bullosa (RDEB). This is a rare genetic inherited lifelong condition in which the skin is fragile and will blister and shear away with minimal friction and trauma. Blisters are not self-limiting and will enlarge unless lanced and drained. It also affects the internal skin.

Donation summary

Total raised
£340.00
+ £80.75 Gift Aid
Online donations
£340.00
Offline donations
£0.00

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