Story

"1 Day - £1 = a lot of money for this much-needed cause".  

Text APFR99 £1 to 70070 (UK) or donate from £2 via this page.  

Your donation will help to fund high quality biomedical research into the neurological disease, myalgic encephalomyelitis (ME). 

We have helped raise over £500,000 so far. This has enabled IIME's strategy for translational biomedical ME research to get underway at Norwich Research Park, University of East Anglia, by fully funding the foundation study on ME and gut microbiota, and at University College London with  a study of B-cells. This involves collaboration with other clinics and researchers in UK and abroad. We are now aiming to reach £1million for the next phases of the research strategy including leading to a clinical trial of rituximab in ME.

ME is a neurological disease that can affect people of all ages, even very young children.  It has been classified by the World Health Organisation at ICD-10 G93.3, along with post-viral fatigue syndrome, since 1969.

ME was first defined in the 1950s - myalgic means muscle pain - encephalomyeltis means inflammation in the brain and spinal cord. 

ME can be of sudden or gradual onset, can range from mild to very severe, can fluctuate over time, have phases of relapse and remission, or take a more progressive form. Full recovery is rare - we want to change that.   

The hallmark of ME is a marked worsening of symptoms following even minor exertion - post-exertional neuro-immune exhaustion (PENE aka PEM).  

ME can affect almost every system in the body and organs including the heart as well as the brain.  Many patients suffer for years on end, some losing their childhood and youth to the ravages of this disease.

There is still no universal thumbprint diagnostic test, no cure, and few treatments available for symptoms, leaving doctors at a loss as to how help their patients and with often dire consequences for patients and their families.  

It's about time this changed and we are determined to make sure that happens - we now have an international community of world class researchers willing to help us and they need our help to fund their vital work - so let's make this year count - one day - one pound - one drop from lots of us to create a sea change.

Donating through JustGiving is easy, fast and safe. They’ll send your money directly to the charity and will make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. To donate £1 by JustTextGiving, text this code: APFR99 to: 70070 or you can donate from £2 via this Just Giving page.  


Please see Invest in ME charity's website at www.investinme.org or www.ldifme.org for more info about M.E. and IIME's work, and for more ways to help raise awareness and/or funds for this small charity's BIG cause.  Thank-you for your support!

Updates 29

A memorable May ME Awareness Month closed with a hugely successful few days of the 10th Invest in ME International Biomedical Research Conference events in London. Your donations are making a vital difference to the future of sufferers of all ages with this neuroimmune disease.

01/06/15 12:19

1st May 2015: HAPPY 60TH BIRTHDAY PAUL KAYES, co-founder of Let's Do It For ME! The patient-driven awareness & fundraising campaign created to support Invest in ME Charity's work on developing a centre of excellence for research & treatment of M.E. (aka ME/CFS) http://ldifme.org/

01/05/15 07:54

Sponsors of this page have contributed to a whopping £500k raised for IIME Charity Biomedical Research Funds since supporters launched the Let's Do It for ME campaign! IIME's progress is remarkable THANKS to all of you! Let's get to £1m - every single £1 counts - let's do it! :)

01/03/15 08:36

Happy New Year to all our sponsors & supporters! 2015 marks the 10th year of this small charity's amazing progress in driving forward recognition & research for tests & treatments for myalgic encephalomyelitis. Let's help them by getting this special year off to a great start :)

01/01/15 12:13

No prizes for guessing that our December Wish is for a cure, so THANKS for making our wish come true by sponsoring our page. See ldifme.org for festive cards & gifts in aid of IIME Charity. Kerryn's 1000th donation to this page is a great start to December. Well done one and all!

01/12/14 04:50

Raising money for

IiME

IiME

Charity Registration No. 1114035

Invest in ME has as its objectives to change how myalgic encephalomyelitis (ME) is perceived and treated in the press, by health departments and by healthcare professionals. We aim to do this by raising funding for biomedical research and improving education about the disease.

Raising money for

Run by IiME

Charity Registration No. 1114035

Donations 1101

Happy July!

Donation by Henry Anderson on 09/07/15

£2.00

+ £0.50 Gift Aid

Happy July everyone! One month closer to a cure/treatment!! xx

Donation by Kerryn Groves on 01/07/15

£2.00

Donation by Teresa Greenwood on 01/07/15

£2.00

+ £0.50 Gift Aid

Donation by Anonymous on 01/07/15

£2.00

+ £0.50 Gift Aid

text donation

Donation by Anonymous on 01/07/15

£1.00

+ £0.25 Gift Aid

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Donation by Anonymous on 01/07/15

£2.00

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Donation by Anonymous on 01/07/15

£1.00

+ £0.25 Gift Aid

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Donation by Anonymous on 01/07/15

£1.00

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Donation by Teresa Greenwood on 02/06/15

£2.00

+ £0.50 Gift Aid

Donation by Anonymous on 02/06/15

£2.54

Donation by Anonymous on 01/06/15

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 01/06/15

£2.00

+ £0.50 Gift Aid

Donation by Anonymous on 01/06/15

£2.00

+ £0.50 Gift Aid

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Donation by Anonymous on 02/06/15

£1.00

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Donation by Anonymous on 01/06/15

£1.00

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Donation by Anonymous on 01/06/15

£2.00

+ £0.50 Gift Aid

Happy June everyone!

Donation by Kerryn Groves on 01/06/15

£2.00

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Donation by Anonymous on 01/06/15

£1.00

via sms

For a great cause... my sister has fibro myalgia, it's not exactly the same but I've seen first hand the pain she's in at times. Well done kerryn

Donation by David lincoln on 13/05/15

£5.00

+ £1.25 Gift Aid

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Donation by Anonymous on 13/05/15

£1.00

via sms

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Donation by Anonymous on 13/05/15

£1.00

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Donation by Anonymous on 13/05/15

£1.00

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Donation by Anonymous on 13/05/15

£1.00

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Donation by Anonymous on 13/05/15

£1.00

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Donation by Anonymous on 13/05/15

£1.00

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Donation summary

  • * Online donations£5,665.00
  • Offline donations£125.00
  • Text donations£861.00
  • Total raised£6,651.00
  • Gift Aid£1,046.81

* Charities pay a small fee for our service. Find out how much it is and what we do for it.