Story

"1 Day - £1 = a lot of money for this much-needed cause".  

Text APFR99 £1 to 70070 (UK) or donate from £2 via this page.  

Your donation will help to fund high quality biomedical research into the neurological disease, myalgic encephalomyelitis (ME). 

We have helped raise over £600,000 so far. This has enabled IIME's strategy for translational biomedical ME research to get underway at Norwich Research Park, University of East Anglia, by fully funding the foundation study on ME and gut microbiota, and at University College London with  a study of B-cells. This involves collaboration with other clinics and researchers in UK and abroad. We are now aiming to reach £1million for the next phases of the research strategy including leading to a clinical trial of rituximab in ME.

ME is a neurological disease that can affect people of all ages, even very young children.  It has been classified by the World Health Organisation at ICD-10 G93.3, along with post-viral fatigue syndrome, since 1969.

ME was first defined in the 1950s - myalgic means muscle pain - encephalomyeltis means inflammation in the brain and spinal cord. 

ME can be of sudden or gradual onset, can range from mild to very severe, can fluctuate over time, have phases of relapse and remission, or take a more progressive form. Full recovery is rare - we want to change that.   

The hallmark of ME is a marked worsening of symptoms following even minor exertion - post-exertional neuro-immune exhaustion (PENE aka PEM).  

ME can affect almost every system in the body and organs including the heart as well as the brain.  Many patients suffer for years on end, some losing their childhood and youth to the ravages of this disease.

There is still no universal thumbprint diagnostic test, no cure, and few treatments available for symptoms, leaving doctors at a loss as to how help their patients and with often dire consequences for patients and their families.  

It's about time this changed and we are determined to make sure that happens - we now have an international community of world class researchers willing to help us and they need our help to fund their vital work - so let's make this year count - one day - one pound - one drop from lots of us to create a sea change.

Donating through JustGiving is easy, fast and safe. They’ll send your money directly to the charity and will make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. To donate £1 by JustTextGiving, text this code: APFR99 to: 70070 or you can donate from £2 via this Just Giving page.  


Please see Invest in ME charity's website at www.investinme.org or www.ldifme.org for more info about M.E. and IIME's work, and for more ways to help raise awareness and/or funds for this small charity's BIG cause.  Thank-you for your support!

Updates 31

Happy New Year everyone! 2015 was a landmark year for Invest in ME, supported by fabulous fundraising for this amazing small charity's big cause. Let's see 2016 go from strength to strength in dedicated pursuit of tests & treatments for this dreadful disease. Let's Do It for ME!

01/01/16 10:25

1st December 2015 is Giving Tuesday! http://ldifme.org/1st-december-giving-tuesday/ Thank you for supporting Invest in ME on this international day of charitable giving.

01/12/15 12:18

A memorable May ME Awareness Month closed with a hugely successful few days of the 10th Invest in ME International Biomedical Research Conference events in London. Your donations are making a vital difference to the future of sufferers of all ages with this neuroimmune disease.

01/06/15 12:19

1st May 2015: HAPPY 60TH BIRTHDAY PAUL KAYES, co-founder of Let's Do It For ME! The patient-driven awareness & fundraising campaign created to support Invest in ME Charity's work on developing a centre of excellence for research & treatment of M.E. (aka ME/CFS) http://ldifme.org/

01/05/15 07:54

Sponsors of this page have contributed to a whopping £500k raised for IIME Charity Biomedical Research Funds since supporters launched the Let's Do It for ME campaign! IIME's progress is remarkable THANKS to all of you! Let's get to £1m - every single £1 counts - let's do it! :)

01/03/15 08:36

Raising money for

IiME

IiME

Charity Registration No. 1114035

Invest in ME has as its objectives to change how myalgic encephalomyelitis (ME) is perceived and treated in the press, by health departments and by healthcare professionals. We aim to do this by raising funding for biomedical research and improving education about the disease.

Raising money for

Run by IiME

Charity Registration No. 1114035

Donations 1138

Happy February everyone!

Donation by Anonymous on 01/02/16

£2.00

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Donation by Anonymous on 01/02/16

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Remembered on the 1st, for a change. Happy February everyone. Linda x

Donation by Linda Hending on 01/02/16

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Donation by Anonymous on 14/01/16

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Late again, 7 Jan, blooming brain fog!

Donation by Linda Hending on 07/01/16

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Happy new year. Please can this year be the year we get the breakthrough we so desperately need??!!

Donation by Kerryn Groves on 01/01/16

£2.00

Start the year positively, let's get this #ME research kickstarted. After selling goods to the value of £42 on eBay I'm donating £21 direct to IiME & £21 to @MikesEUmaras (which supports IiME)

Donation by Jackie on 01/01/16

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Donation by Anonymous on 16/12/15

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Donation by Simone de Monerri on 01/12/15

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Donation by Anonymous on 01/12/15

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Donation by Anonymous on 01/12/15

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Donation by Anonymous on 01/12/15

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Donation by Anonymous on 30/11/15

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Donation by Anonymous on 23/11/15

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Donation by Anonymous on 01/11/15

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Donation by Anonymous on 28/10/15

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Donation by Anonymous on 19/10/15

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Donation summary

  • * Online donations£5,740.00
  • Offline donations£125.00
  • Text donations£895.00
  • Total raised£6,760.00
  • Gift Aid£1,062.81

* Charities pay a small fee for our service. Find out how much it is and what we do for it.