Story

"1 Day - £1 = a lot of money for this much-needed cause". 
To join us in creating a sea change by donating just £1 (more if you wish) on 1 day a month for Biomedical M.E Research, please text the code APFR99 £1 to 70070, or you can donate from £2 via this page. 
We chose 1st of each month as donation day, but all donations throughout the month will add to the total raised.  We support Invest in ME (IiME) as they are leading the way in UK as an independent, forward-thinking, proactive and entirely voluntary-run charity, and we have shown that every £1 certainly does count.  See more at ldifme.org 

Your donation will help to fund 1st class biomedical research into the neurological disease, myalgic encephalomyelitis (ME). This monthly 1 Day - £1 fundraiser, inspired by Ruth Gilchrist, is part of our patient-driven fundraising campaign in support of IiME, launched in July 2011, called Let's do it for ME! 

We reached our initial target of £100,000 in May 2013.  This enabled IiME's strategy for translational biomedical ME research to begin at Norwich Research Park, University of East Anglia, by fully funding the foundation study on ME and gut microbiota.  We are now raising funds for the next phase of research at UEA and a clinical trial of rituximab in ME, which IiME is organising at University College London. http://investinme.org/ResearchCurrentProjects.htm

ME is a neurological disease that can affect people of all ages, even very young children.  It has been classified by the World Health Organisation at ICD-10 G93.3, along with post-viral fatigue syndrome, since 1969.

ME was first defined in the 1950s - myalgic means muscle pain - encephalomyeltis means inflammation in the brain and spinal cord. 

ME can be of sudden or gradual onset, can range from mild to very severe, can fluctuate over time, have phases of relapse and remission, or take a more progressive form. Full recovery is rare - we want to change that.   

The hallmark of ME is a marked worsening of symptoms following even minor exertion - post-exertional neuro-immune exhaustion (PENE aka PEM).  

ME can affect almost every system in the body and organs including the heart as well as the brain.  Many patients suffer for years on end, some losing their childhood and youth to the ravages of this disease.

There is still no universal thumbprint diagnostic test, no cure, and few treatments available for symptoms, leaving doctors at a loss as to how help their patients and with often dire consequences for patients and their families.  

It's about time this changed and we are determined to make sure that happens - we now have an international community of world class researchers willing to help us and they need our help to fund their vital work - so let's make this year count - one day - one pound - one drop from lots of us to create a sea change.

Donating through JustGiving is easy, fast and safe. They’ll send your money directly to the charity and will make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. To donate £1 by JustTextGiving, text this code: APFR99 to: 70070 or you can donate from £2 via this Just Giving page.  


Please see Invest in ME charity's website at www.investinme.org or www.ldifme.org for more info about M.E. and IiME's work, and for more ways to help raise awareness and/or funds for this small charity's BIG cause.  Thank-you for your support!

Updates 27

Sponsors of this page have contributed to a whopping £500k raised for IIME Charity Biomedical Research Funds since supporters launched the Let's Do It for ME campaign! IIME's progress is remarkable THANKS to all of you! Let's get to £1m - every single £1 counts - let's do it! :)

01/03/15 08:36

Happy New Year to all our sponsors & supporters! 2015 marks the 10th year of this small charity's amazing progress in driving forward recognition & research for tests & treatments for myalgic encephalomyelitis. Let's help them by getting this special year off to a great start :)

01/01/15 12:13

No prizes for guessing that our December Wish is for a cure, so THANKS for making our wish come true by sponsoring our page. See ldifme.org for festive cards & gifts in aid of IIME Charity. Kerryn's 1000th donation to this page is a great start to December. Well done one and all!

01/12/14 04:50

THANKS to Ruth Gilchrist for starting this fundraiser as a valued member of Team Let's do it for ME! She's now taking a well-earned back-seat from the planning group, but "remains a passionate supporter of IIME and biomedical research". Let's keep sharing every 1st of the month!

01/11/14 04:27

Jam-packed Sept. IIME Newsletter! Now funding 3 PhD & 3 MRes students @ UEA, Oxford & Cornell, NY, all for biomedical ME research and linked with IIME UK centre of excellence for ME! Lots more besides. Every £1 well spent - THANK YOU for your support of this amazing progress!

01/10/14 10:21

Raising money for

IiME

IiME

Charity Registration No. 1114035

Invest in ME has as its objectives to change how myalgic encephalomyelitis (ME) is perceived and treated in the press, by health departments and by healthcare professionals. We aim to do this by raising funding for biomedical research and improving education about the disease.

Donations 1044

Every little helps

Donation by Anonymous on 01/03/15

£2.00

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Happy March everyone!

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We're Marching on :)

Donation by Paul Kayes (Let's do it for ME) on 01/03/15

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Donation by Maria Montecalvo on 01/02/15

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Together we can do this :)

Donation by Paul Kayes (Let's do it for ME) on 01/02/15

£2.00

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Happy February!

Donation by Kerryn Groves on 01/02/15

£2.00

Here's for the next ten months in case we forget :)

Donation by RandP on 01/02/15

£10.00

+ £2.50 Gift Aid

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Donation by Anonymous on 10/01/15

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Donation by K.CORNWELL on 08/01/15

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Donation summary

  • * Online donations£5,514.00
  • Offline donations£125.00
  • Text donations£835.00
  • Total raised£6,474.00
  • Gift Aid£1,020.06

* Charities pay a small fee for our service. Find out how much it is and what we do for it.