Story
Like every year since 2016, we are participating in an event to raise awareness about Albinism.
What is Albinism ?
Albinism is a rare inherited life-long condition that occurs worldwide across all races and ethnic backgrounds. In the UK, it is thought that Albinism affects 1:17,000 although this is probably an underestimate. People with Albinism do not produce sufficient melanin (pigment) and this affects their eyes, skin and hair. One of the key impact of Albinism is extremely poor vision (partially sighted) and impact of sunlight. There is no known way to help people with Albinism produce more melanin at present, research studies are underway.
https://www.albinism.org.uk/about-6
What we are doing on 10th June for Albinism Awareness Day
We are following England’s greatest river as it heads East through the heart of the Capital. It’s 25 km – from Putney Bridge to beyond the mighty Tower Bridge – and each of the historic 16 crossings has a story to tell.
You can also donate via www.albinism.org.uk/donations
Bhavit Shah
Anubhuti Shah
Saina Shah
Jitendra Rambhiya
Manisha Rambhiya
Vishwakant Sharma
Aastha Sharma
Rahul Saraf
Anoushka Saraf
PK
Sasmit Sahu
Sunita Sahu
Vikas Dagar
Ravindra Dhaka
Chaman Kedia
Pramod Singh
Meena Singh
Something about charity we are raising funds for
Albinism Fellowship is run completely by unpaid volunteers and your fund helps them organising various events for people with albinism + providing help and support. One if the key support provided by charity is for new parents whose child has been diagnosed with albnism.