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In memory of The Captain

Billie-Jo Long is raising money for PoTS UK
In memory of Christopher Harris (The Captain)
PoTS UK was founded by a group of healthcare professionals with PoTS who recognised the need to increase awareness of this condition. We are passionate about educating and supporting patients, family, friends and medical professionals about this widely unrecognised and misdiagnosed condition. We do this by sharing up to date evidence and resources. We also work with healthcare professionals and other charities in the UK and abroad, and advocate for our members by seeking better NHS services, more research, and targeted treatments for people with PoTS.

Story

PoTS is a condition that has shaped much of Billie-Jo’s life. It took two years of hospital trips and uncertainty before she finally received a diagnosis at the Royal Brompton, age 13. Throughout her teens it had a huge impact on her quality of life, and even now it remains a daily challenge.

Despite how many people it affects, PoTS is still widely misunderstood. Many are misdiagnosed, and there is currently no cure - only ways to manage symptoms. PoTS UK provides vital support, raises awareness, and funds research so that others don’t have to go through the same long and difficult journey,

For those who wish to, donations can me made in place of - or alongside - floral tributes. Supporting PoTS UK is a meaningful way to honour my dad and help others facing this condition.

Thank you for your kindness.

Donation summary

Total
£685.00
+ £152.50 Gift Aid
Online
£685.00
Offline
£0.00

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