Rebecca Moss

Mossy's Miles for The Marfan Trust

Fundraising for The Marfan Trust
raised of £5,000 target
by 1 supporter
12000 Miles Cycled by end of 2032, 1 January 2024
The Marfan Trust

Verified by JustGiving

RCN 328070
We fund medical research to aid diagnosis & treatment


Being diagnosed with Marfan Syndrome when I was 13 was a milestone in my life. I have had pneumothoraces (collapsed lungs) which led to major lung surgery, I also have issues with my joints. My aim is to raise as much as possible by the end of my 50th birthday year (2032) to help those less fortunate than me with Marfan Syndrome. I will do this by pledging to cycle 12000 miles between 2024 and 2032 around the hours of working full time as a Coroner's Officer. Every single day at work I get reminded of my motto in life; live every day as if it is your last as one day it will be. All help both emotional and via sponsorship will be greatly appreciated!

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About the charity

The Marfan Trust

Verified by JustGiving

RCN 328070
Marfan syndrome is a disorder of the body's connective tissues, affecting the eyes, heart and skeleton.As the sole charity in the UK dedicated to improving and saving the lives of those with the syndrome we provide personalised support, undertake research into improved treatments, & raise awareness.

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