Simon's fundraiser for Myositis UK
Simon Donhou is raising money for Myositis UK
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Thanks for taking the time to visit my JustGiving page.
As an avid cyclist, I am thrilled to announce that I will be conquering the epic Alpe D'Huez route in June, 2024 with a couple of my closest friends. This personal cycling challenge is not only a test of my physical endurance but also an opportunity to raise funds and awareness for Myositis UK.
Alpe d'Huez is a climb in the region Bourg d'Oisans. It is 13.9km long and bridges 1118 vertical meters with an average gradient of 8%. The top of the ascent is located at 1840 meters above sea level.
https://climbfinder.com/en/climbs/alpe-d-huez
Myositis is a rare autoimmune disease that affects the muscles and can have a profound impact on individuals' lives. I hope to be able to advocate for those living with myositis and contribute towards research, support services, and improved treatments.
Approximately 3 in every million children are diagnosed with Juvenile Dermatomyositis each year. As many of you are aware, my youngest, Matilda, was diagnosed in mid-2023, under the age of 2. This was picked up initially with skin signs but further investigations revealed that it had already started to affect her muscles. She has undertaken numerous investigations, scans, blood tests and currently has a daily and weekly medication regime which lowers her immune system.
She is a warrior, a force of nature and an absolute champion and has taken all of this in her stride. She has the most amazing older sister and family surrounding her. The future is not certain but we are hopeful that this condition should not be something she will need to contend with in her adult life.
I am setting a target of £1,000 for this fundraising campaign. Every donation will make a difference in the lives of those affected by myositis. Your support will not only help me reach my fundraising goal but also provide much-needed resources to Myositis UK.
Join me in making a positive impact by donating today, no matter how big or small. Together, we can bring hope and support to individuals battling myositis.