Remembering Noah Reynolds

Our fundraising achievements in memory of Noah Reynolds

  • Remember

    Amount we’ve raised in Noah’s memory $2,412.29

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    ACT for SMA

    ACT for SMA

    Our latest donations

    83 skip to donations section
    • Donation by Amanda Smith

      Well done Ed & team - keep up the good work!!

      £15.00

      + £3.75 Gift Aid

    • Donation by Peter and Pauline

      Well done all.

      £10.00

      + £2.50 Gift Aid

    Events we're doing

    1 skip to events section
    • 21May

      Tough Mudder Midlands 2016

    Our fundraising pages 1

    • Noah-Reynolds

      Thanks for taking the time to visit our JustGiving page;

      A team of 10 close friends are doing the Midlands Tough Mudder in May to raise money for the Ally Cadence Trust for Spinal Muscular Atrophy.

      Here's our story;

      On the 4th July 2014, my wife Robyn & I, were so happy when our first child was born, a beautiful baby boy called Noah. For 5 months we had no idea that there was anything wrong, then just before Christmas, after becoming slightly concerned that he wasn't moving his legs enough, we visited a pediatrician & were told the devastating news that Noah probably had a serious neuromuscular disorder. Early in the new year he was diagnosed with SMA Type 1.

      SMA stands for Spinal Muscular Atrophy; it is a genetic disorder that is currently incurable. One person in every forty is a carrier of the defective gene that causes SMA & if both parents are a carrier, their child has a 1 in 4 chance of having the disease. SMA affects the motor neurons in the spinal cord & it prevents messages traveling from the brain, down the spinal cord, this results in muscles through out the body becoming weaker and weaker. SMA Type 1 is the most severe form of the disease & is generally picked up by the time a child reaches 6 months old. It is the biggest genetic killer of under 2's in the UK. About 80% of babies with SMA Type 1 sadly pass away before their first birthday.

      SMA does not affect the brain at all & Noah was one happiest babies you could ever hope to meet. He had the most beautiful big brown eyes, & the cheekiest smile you will ever see. He was mischievous & so affectionate. Noah had such a kind soul, he was always calm & so patient. Above all else Noah made people smile. He brought so much joy to us & to so many people. He also loved animals & was never happier then when our dog & cats were with him. 

      Noah was such a fighter. He gave us 6 wonderful months before he was diagnosed with SMA & then fought on for another 9 incredible months. He remained healthy & happy for virtually every day of his life & stayed at home with us until the end. Robyn & I feel blessed to have been Noah’s parents & we will always be thankful that we had him in our lives. When you get a diagnosis of a terminal illness, you expect there to be nothing but dark & horrific times ahead, but for us there was also a huge amount of happiness & joy in between the tears. 

      In October 2015 Noah suddenly became very poorly & died, he was surrounded by his Mummy, Daddy and best friend Isambard the dog. He was 15 months old. 

      When Noah was first diagnosed we called ACT for SMA that evening. The very next day Emma and Karl drove down from Lincoln to see us. Emma and Karl are the founders of the Ally Cadence Trust for Spinal Muscular Atrophy. They lost their beautiful daughter, Ally, to SMA Type1 seven years ago. Following their experience they felt that parents with recently diagnosed children needed support and information quickly. They set up ACT for SMA to try and generate a new line of funding and to raise awareness of Spinal Muscular Atrophy nationwide and to provide support to affected families. Emma and Karl came to see us so quickly and spent hours with us, answering questions and discussing their experiences. They also brought with them a new travel system for Noah, sensory light weight toys for him, monitors and a camera. They advised us to start doing activities with Noah, such as going to the beach and the zoo, which we did, creating memories that we will treasure for ever. They continue to provide on-going advice and support. Without their help, we could not have coped as well as we have.

      ACT for SMA were there for Ed, Robyn and Noah when they needed them, so please give generously, so they can be there for the next family who call them. 

      Ed Reynolds (Noah's Dad)

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      Total so far:

      $2,125.22

    Donations made in memory of Noah Reynolds83

    • Donation by Amanda Smithto Edward's page on 01/06/2016

      Well done Ed & team - keep up the good work!!

      £15.00

      + £3.75 Gift Aid

    • Donation by Peter and Paulineto Edward's page on 27/05/2016

      Well done all.

      £10.00

      + £2.50 Gift Aid

    • Donation by Tess, Steve, Sam and Roseto Edward's page on 27/05/2016

      Well done everyone!

      £20.00

      + £5.00 Gift Aid

    • Donation by Nic and Tomto Edward's page on 25/05/2016

      Well done Lisa, David and all of team Noah.

      £20.00

      + £0.00 Gift Aid

    • Donation by Katie Birdto Edward's page on 24/05/2016

      Well done Andrea and the rest of the team!

    • Donation by Dan Ball & Familyto Edward's page on 24/05/2016

      Well done Ed and team; fantastic cause!

      £20.00

      + £5.00 Gift Aid

    • Donation by Rob Priceto Edward's page on 23/05/2016

      Well done everyone! Did Ralph avoid getting his head wet again this year?

      £20.00

      + £5.00 Gift Aid

    • Donation by Tim and Claire Muntto Edward's page on 23/05/2016

      Well Done Lisa, David, Andi and Alex and everyone involved. What a brilliant thing to have done!

      £10.00

      + £0.00 Gift Aid

    • Donation by Heena to Edward's page on 23/05/2016

    • Donation by John Danversto Edward's page on 22/05/2016

      What a fantastic tribute to Noah. Good luck to all involved. x

      £20.00

      + £5.00 Gift Aid

    • Donation by Nicola Harkerto Edward's page on 21/05/2016

      Well done to Lisa, Dabba and team. Fantastic achievement!

      £20.00

      + £5.00 Gift Aid

    • Donation by Andy and Caela to Edward's page on 21/05/2016

      You're amazing and an inspiration Well Done xx Think I may have a go next year !!

      £20.00

      + £0.00 Gift Aid

    • Donation by Aunty Kate and Uncle Neillto Edward's page on 21/05/2016

      Hope you have fun!

      £25.00

      + £6.25 Gift Aid

    • Donation by Glenys Barnettto Edward's page on 21/05/2016

      Good Luck and hope it all goes well!

      £40.00

      + £10.00 Gift Aid

    • Donation by Elaineto Edward's page on 21/05/2016

      Good luck!!

      £10.00

      + £2.50 Gift Aid

    • Donation by Alexto Edward's page on 20/05/2016

      Good luck, team.

      £10.00

      + £2.50 Gift Aid

    • Donation by Clare and Jamesto Edward's page on 20/05/2016

      R E S P E C T. Good luck to you all x

      £20.00

      + £5.00 Gift Aid

    • Donation by The Skipseys to Edward's page on 20/05/2016

      Good luck guys! X

    • Donation by Tim & Caroline Mc to Edward's page on 20/05/2016

      Good luck all 👍🏻

      £20.00

      + £5.00 Gift Aid

    • Donation by Becki and co! to Edward's page on 20/05/2016

      Good luck Dab and Lisa. Hope you don't get too many shocks! I know how much this cause means to you, Lisa. X X

    • Donation by Anonymousto Edward's page on 19/05/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by Christine Halesto Edward's page on 19/05/2016

      Good luck, I will be cheering you on! Love Christine xxx

      £20.00

      + £5.00 Gift Aid

    • Donation by Katy Pardoto Edward's page on 19/05/2016

      Good luck guys. Sorry I'm not going to be there. Will be thinking of you all. Xx

      £70.00

      + £17.50 Gift Aid

    • Donation by Timto Edward's page on 19/05/2016

      Good luck Ed!

      £30.00

      + £7.50 Gift Aid

    • Donation by Helen Youngto Edward's page on 19/05/2016

      Good luck Team Noah! With much love from Helen, Andrew, Grace & Joseph xxx

      £15.00

      + £3.75 Gift Aid

    • Donation by Anonymousto Edward's page on 19/05/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by Paul Marriageto Edward's page on 18/05/2016

      Good luck at the weekend & very best wishes to you & your family

      £30.00

      + £7.50 Gift Aid

    • Donation by Jane Knightto Edward's page on 18/05/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by The Blight familyto Edward's page on 18/05/2016

      Good luck All. Xxx

      £10.00

      + £2.50 Gift Aid

    • Donation by Clare Mondairto Edward's page on 17/05/2016

      Good Luck Team Noah!

      £30.00

      + £7.50 Gift Aid

    • Donation by Anonymousto Edward's page on 17/05/2016

      Have a good one, excellent cause.

      £20.00

      + £5.00 Gift Aid

    • Donation by Debbieto Edward's page on 17/05/2016

      Goodluck all of you.xx

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Edward's page on 17/05/2016

      Good Luck, David and Lisa and co! Lots of love, Rachel, Andrew and Milo xxx

    • Donation by Simon Coveto Edward's page on 17/05/2016

      Enjoy it or at least the buzz post severe exercise!! xx

      £30.00

      + £7.50 Gift Aid

    • Donation by Anonymousto Edward's page on 17/05/2016

      Good luck Lisa. Hope all the training pays off.

      £10.00

      + £2.50 Gift Aid

    • Donation by Abi and the gangto Edward's page on 16/05/2016

      £5.00

      + £1.25 Gift Aid

    • Donation by Karen Patersonto Edward's page on 16/05/2016

      £5.00

      + £1.25 Gift Aid

    • Donation by Laura Davies to Edward's page on 16/05/2016

      Good luck guys xx do Noah proud

      £11.00

      + £0.00 Gift Aid

    • Donation by Mike & Jill Nethercliffeto Edward's page on 15/05/2016

      £20.00

      + £5.00 Gift Aid

    • Donation by Jan and Barry xxxxto Edward's page on 13/05/2016

      Good luck

      £20.00

      + £5.00 Gift Aid

    • Donation by Mum & Dad McCaffertyto Edward's page on 13/05/2016

      Good luck everyone will be thinking of you on Saturday 21st

      £50.00

      + £12.50 Gift Aid

    • Donation by Sue & Paul Matthewsto Edward's page on 13/05/2016

      Good luck, love Sue & Paul x

      £15.00

      + £3.75 Gift Aid

    • Donation by Al & Lynnto Edward's page on 13/05/2016

      Good luck guys. Rather you than us!

      £20.00

      + £5.00 Gift Aid

    • Donation by Anonymousto Edward's page on 13/05/2016

      Love from Hannah, Steve, Oliver & Finley xx

      £10.00

      + £0.00 Gift Aid

    • Donation by Anonymousto Edward's page on 13/05/2016

      Good luck all.

      £10.00

      + £2.50 Gift Aid

    • Donation by Debs and Ian Carsonto Edward's page on 13/05/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by Lindsey Richardsonto Edward's page on 13/05/2016

      Good luck Team Noah! Lots of love- Alex, Lindsey & Archie xxx

      £10.00

      + £2.50 Gift Aid

    • Donation by Wendy Burgessto Edward's page on 13/05/2016

      What a fantastic cause, good luck everyone

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Edward's page on 12/05/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Edward's page on 10/05/2016

      Good luck guys!

      £30.00

      + £7.50 Gift Aid

    • Donation by Terry and Lynnto Edward's page on 10/05/2016

      Good luck to everyone taking part.

      £50.00

      + £12.50 Gift Aid

    • Donation by Vicky, Chris, Joe and Evie xxxto Edward's page on 10/05/2016

      Good luck guys, you are all amazing xxx

      £30.00

      + £7.50 Gift Aid

    • Donation by Anonymousto Edward's page on 09/05/2016

      Good luck everyone. What an amazing cause. Lots of love Angela Simon Katherine and Rachel xxxx

      £30.00

      + £7.50 Gift Aid

    • Donation by Hannah Galeto Edward's page on 04/05/2016

      Best of luck, Adam! Great cause. x

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Edward's page on 04/05/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by Stephen Spurrellto Edward's page on 04/05/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by Michael and Janto Edward's page on 03/05/2016

      Good luck to all the team, xx

    • Donation by Julie, James and the kids. to Edward's page on 02/05/2016

      Good luck Andi and Alex, and everyone else on the team. What an amazing cause to be running for. Xx

      £20.00

      + £5.00 Gift Aid

    • Donation by Sheelaghto Edward's page on 02/05/2016

      Good luck Pandy and Alex xxx

      £25.00

      + £6.25 Gift Aid

    • Donation by Joe Barryto Edward's page on 29/04/2016

      Good luck, great cause

      £30.00

      + £7.50 Gift Aid

    • Donation by Kate lees & stu Harrison to Edward's page on 21/04/2016

      Good luck boys! I'll be supporting from my dry, warm, arm chair :) have fun xxx

      £20.00

      + £5.00 Gift Aid

    • Donation by Geoff & Deniseto Edward's page on 18/04/2016

      Best of luck to all the team

      £50.00

      + £12.50 Gift Aid

    • Donation by Sue Sansom and family.to Edward's page on 17/04/2016

      Go for it Andi and Alex. Once you are through your first muddy challenge, you won't notice the rest...! Great cause. x

    • Donation by Jill Jamesto Edward's page on 05/04/2016

      £20.00

      + £5.00 Gift Aid

    • Donation by Alex jones to Edward's page on 01/04/2016

      Good luck

      £20.00

      + £5.00 Gift Aid

    • Donation by Rob & Katherineto Edward's page on 30/03/2016

      Good luck all

      £20.00

      + £0.00 Gift Aid

    • Donation by Alex Dingwallto Edward's page on 30/03/2016

      Go for it, boys and I want to see some properly gruelling post race pics

      £10.00

      + £2.50 Gift Aid

    • Donation by Rachel Vicary to Edward's page on 30/03/2016

      Such a touching story and my heart goes out to you both. Wonderful cause xxx

      £25.00

      + £6.25 Gift Aid

    • Donation by Alastair Merrillto Edward's page on 30/03/2016

      £10.00

      + £0.00 Gift Aid

    • Donation by Emma Bundockto Edward's page on 30/03/2016

      All the best

      £20.00

      + £5.00 Gift Aid

    • Donation by Sarah Napier to Edward's page on 30/03/2016

      Good luck! Love to you and your family

      £30.00

      + £7.50 Gift Aid

    • Donation by George Christoudiasto Edward's page on 08/03/2016

      £30.00

      + £7.50 Gift Aid

    • Donation by Jodie Sowamburto Edward's page on 24/02/2016

      Thank you Jodie xx

      £15.27

      + £0.00 Gift Aid

    • Donation by James & Sarahto Edward's page on 17/02/2016

      Go kick some ass!!

      £50.00

      + £12.50 Gift Aid

    • Donation by Anonymousto Edward's page on 17/02/2016

      Love Laurie xx

      £30.00

      + £7.50 Gift Aid

    • Donation by Anonymousto Edward's page on 06/02/2016

      £10.00

      + £0.00 Gift Aid

    • Donation by Sabrina S xxto Edward's page on 05/02/2016

      Good luck Ed. Love to you all

      £10.00

      + £2.50 Gift Aid

    • Donation by kate everding to Edward's page on 05/02/2016

      Renno I hope you reach your funding goal, and some! I'm so sorry to hear about Noah, but what a wonderful cause ACT are. They certainly deserve support. Good luck team!!

      $30.00

    • Donation by Caroline Hallto Edward's page on 05/02/2016

      Pictures of Adam covered in mud please! I can add them to the collection of those of him with a mullet! Good luck all x

      £10.00

      + £2.50 Gift Aid

    • Donation by Katie & Stu xxto Edward's page on 05/02/2016

      £20.00

      + £5.00 Gift Aid

    • Donation by Anonymousto Edward's page on 05/02/2016

      £20.00

      + £5.00 Gift Aid

    • Donation by Jo Simmons to Edward's page on 05/02/2016

      Go Adam!

      £10.00

      + £2.50 Gift Aid

    • Donation by Anne-Marieto Edward's page on 04/02/2016

      Good luck, thank you for sharing such a personal story of sadness and happiness but your little man will help you to help others and so the baton of kindness and understanding passes on

    Charities we're helping 1

    • ACT for SMA

      ACT for SMA

      The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS

    Events we're doing 1

      • 21May

        Tough Mudder Midlands 2016

      • Other events