Remembering Eilys Elisabeth Hartley

Our fundraising achievements in memory of Eilys Elisabeth Hartley

  • Remember

    Amount we’ve raised in Eilys Elisabeth’s memory $2,466.06

    Make a page for Eilys Elisabeth

    Charities we're helping

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    ACT for SMA

    ACT for SMA

    Our latest donations

    143 skip to donations section
    • Donation by Anonymous

      £10.00

      + £2.50 Gift Aid

    • text donation

      Donation by

      £5.00

      + £0.00 Gift Aid

    Events we're doing

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    • 30Sep

      Getting cinderEmma the ball

    Our fundraising pages 1

    • cinderEmmaWillGoToTheBall

      My beautiful daughter Eilys was diagnosed with Spinal Muscular Atrophy type 1 just before christmas last year. We had loads of wonderful adventures with her and packed loads into her short life. She went on a boat, she had lots of lovely holidays with her family, she went to the zoo, to farms and had a smile on her face every day. She sadly passed away on 28th June 2016 just 2 weeks after her 1st birthday.

      After we had this devastating diagnosis we got in contact with the Ally Cadence Trust for SMA and they were so incredibly helpful. Emma and Karl came to visit us and talk to us about their story. They had lost their daughter, Ally, 7 years ago to SMA type 1 and they set up the charity to help families with the same diagnosis as they were so let down by the charities that were suppose to help them and by the health care services and they didn't want any other families to go through it alone. Luckily for us we had an amazing bunch of people helping us from the NHS and Eilys recieved the most incredible support and care. Unfortunately there are a few things that the NHS can't put in place quickly like assessments for specialised car seats and pushchairs etc and this is where The Ally Cadence Trust stepped in. ACT gave us a specialised car seat so that Eilys could lie flat in that car (really important for babies with SMA type 1 as they can't hold up their heads and it aids their breathing), the wheels for the car seat, a pushchair, an apnea monitor (that we could attach to her nappy and it would alarm if Eilys stopped breathing), an oxygen saturation monitor (a little clip on her toe so we could see the concentration of oxygen in her body so we would know if Eilys was in difficulty), fibre optic string lights for Eilys to play with, a box of appropriate toys and a GoPro (for videoing in the bath, in the swimming pool etc etc). All these things were so incredibly helpful and improved Eilys' quality of life no end. But they provide more than just "stuff" Emma and Karl are also on the end of the phone 24hrs a day 7 days a week for families to contact to have someone to talk to which is so incredible and helpful. Knowing that there was someone there to talk to us who had been in the same situation was just brilliant. Since Eilys died they have been just as supportive to us as a family.

      Recently ACT for SMA had a setback, they had a funding application denied by Children In Need which they really needed to buy much needed equipment for families. And that is why I am trying to raise a little bit of money myself!

      Right so what am I up to? As some of you know my wonderful best friend has organised a charity ball in Alton in Hampshire on October 1st  (https://wearitagainball.wordpress.com) and I am going to travel the 245 miles to get there on public transport wearing a wedding dress* 

      I will be travelling on 30th September. The first part of my journey is a walk from my house to the train station in Crewe where I will get on a virgin train to London. Once at London Euston I will then be the nutter on the tube from Euston to London Waterloo. Then I'll jump on a South Wests Trains to Woking and then another train from Woking to Alton where I will pop to see my lovely Great Auntie Betty for a cup of tea.

      So please, if you feel like you can, support me in my bonkers travel plans. I will be photographing, facebooking and instagraming my travels on the day so you'll be able to watch me and if anyone would like to join me for some of my journey that'd be cool too.

      Thanks for taking the time to visit my JustGiving page.

      Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

      *I'm not wearing my actual wedding dress as it's huge and would  be dangerous but I have a wedding dress to wear and a veil

      icon for OtherPersonalChallenge

      Total so far:

      $2,381.34

    Donations made in memory of Eilys Elisabeth Hartley143

    • Donation by Anonymousto Joe's page on 30/10/2018

      £10.00

      + £2.50 Gift Aid

    • text donation

      Donation by to Joe's page on 13/06/2018

      £5.00

      + £0.00 Gift Aid

    • Donation by Anonymousto Joe's page on 05/12/2016

      From fundraising by the staff at Nottingham Crown Court

      £464.14

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 18/11/2016

      £5.00

      + £0.00 Gift Aid

    • Donation by Anonymousto Joe's page on 10/10/2016

      Lots of love xx

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Joe's page on 04/10/2016

      Lots of love xx

      £10.00

      + £2.50 Gift Aid

    • text donation

      Donation by to Joe's page on 04/10/2016

      £1.00

      + £0.25 Gift Aid

    • Donation by Janet Palmerto Joe's page on 02/10/2016

      £20.00

      + £5.00 Gift Aid

    • Donation by Sue, one of Valerie's friendsto Joe's page on 02/10/2016

      Well done Emma!

      £10.00

      + £2.50 Gift Aid

    • Donation by Andrea Bennion-Cornes to Joe's page on 02/10/2016

      Well done Emma. Xxx

      £5.00

      + £1.25 Gift Aid

    • Donation by Anonymousto Joe's page on 01/10/2016

      Hope this small sum helps towards your goal Emma

      £10.00

      + £2.50 Gift Aid

    • Donation by Sue Millsto Joe's page on 01/10/2016

      Love from Sue Mills.

      £40.00

      + £10.00 Gift Aid

    • Donation by Tom Bentleyto Joe's page on 01/10/2016

      Well done Emma!

      £10.00

      + £2.50 Gift Aid

    • Donation by ursulato Joe's page on 01/10/2016

      £5.00

      + £1.25 Gift Aid

    • Donation by Kayleigh, Paul and Bump Foster xxto Joe's page on 01/10/2016

      Congratulations Emma! Xx

      £10.00

      + £2.50 Gift Aid

    • Donation by Amanda xxto Joe's page on 01/10/2016

      My admiration for you is beyond words! 😍

      £30.00

      + £7.50 Gift Aid

    • Donation by Jayne to Joe's page on 01/10/2016

      I don't know you but know Ro and saw her post and wanted to help. Good luck in your fundraising X.

      £5.00

      + £1.25 Gift Aid

    • Donation by Anonymousto Joe's page on 30/09/2016

      £5.00

      + £1.25 Gift Aid

    • Donation by Hannah Spicerto Joe's page on 30/09/2016

      Good luck Emma. Xxx

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by to Joe's page on 01/10/2016

      £2.00

      + £0.00 Gift Aid

    • text donation

      Donation by Elizabeth Baker-Snookto Joe's page on 01/10/2016

      You are an inspiration and I absolutely love that you share your journey on #Instatram xxxx

      £2.00

      + £0.50 Gift Aid

    • text donation

      Donation by to Joe's page on 30/09/2016

      £1.00

      + £0.00 Gift Aid

    • Donation by Kathleen G Bentleyto Joe's page on 30/09/2016

      Well done, Emma, Love Gran B x

      £20.00

      + £5.00 Gift Aid

    • text donation

      Donation by to Joe's page on 01/10/2016

      £1.00

      + £0.25 Gift Aid

    • text donation

      Donation by to Joe's page on 30/09/2016

      £2.00

      + £0.00 Gift Aid

    • Donation by marlene holdento Joe's page on 30/09/2016

      Good on you Emma.xxxx

      £5.00

      + £0.00 Gift Aid

    • Donation by Anonymousto Joe's page on 30/09/2016

      Sending much love xx

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Joe's page on 30/09/2016

      Nutter. Thinking of you all and especially Eilys x

      £10.00

      + £2.50 Gift Aid

    • Donation by Steph and familyto Joe's page on 30/09/2016

      Good luck x love following you on instagram x amazing inspiration x

    • Donation by Beckyto Joe's page on 30/09/2016

      All my love for you, and this amazing charity. Becky xxx (@bexyboo_gymworld)

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Joe's page on 30/09/2016

      Hope it goes well hun

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Joe's page on 30/09/2016

      All the best Emma. It is amazing what you are doing to support a cause so close to your heart.

      $40.00

    • Donation by Laura Fowlerto Joe's page on 30/09/2016

      Sorry it's not more! Love to you all! Have fun today xx

      £5.00

      + £0.00 Gift Aid

    • Donation by Lynn Warburton to Joe's page on 30/09/2016

      Keep up the fantastic work in memory of Ellys, I'm sure she will be looking down at her mummy with such pride 💕💕

      £10.00

      + £2.50 Gift Aid

    • Donation by Katherine Kingto Joe's page on 30/09/2016

      Go you!!!

    • Donation by Brailsford07to Joe's page on 30/09/2016

      I think you are totally inspiring

      £5.00

      + £1.25 Gift Aid

    • Donation by Anonymousto Joe's page on 30/09/2016

      From Helen, sam and Harrison. Good luck x

      £10.00

      + £2.50 Gift Aid

    • Donation by Leah xxto Joe's page on 30/09/2016

      Good luck today! Amazing lady xxx

      £15.00

      + £3.75 Gift Aid

    • Donation by Anonymousto Joe's page on 30/09/2016

      Well done Emma, already knew you were very brave

      £10.00

      + £2.50 Gift Aid

    • Donation by Karen Evans (Sw)to Joe's page on 29/09/2016

      Good luck Emma 👰😊

      £5.00

      + £1.25 Gift Aid

    • Donation by Anonymousto Joe's page on 29/09/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Joe's page on 29/09/2016

      £10.00

      + £0.00 Gift Aid

    • Donation by Anonymousto Joe's page on 29/09/2016

      I hope the trip is fun!

    • Donation by Alisonto Joe's page on 29/09/2016

      What a good idea!

    • text donation

      Donation by to Joe's page on 30/09/2016

      £5.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 30/09/2016

      £5.00

      + £0.00 Gift Aid

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      Donation by to Joe's page on 30/09/2016

      £1.00

      + £0.00 Gift Aid

    • text donation

      Donation by Suzanne Mooreto Joe's page on 30/09/2016

      Good luck on your journey, Eilys will be proud of you. Suzanne Moore

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by Helen Rockto Joe's page on 30/09/2016

      Good luck Emma will be thinking of you and eilys today xx

      £3.00

      + £0.75 Gift Aid

    • text donation

      Donation by to Joe's page on 30/09/2016

      £5.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 30/09/2016

      £1.00

      + £0.25 Gift Aid

    • text donation

      Donation by to Joe's page on 30/09/2016

      £5.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 29/09/2016

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by to Joe's page on 29/09/2016

      £5.00

      + £1.25 Gift Aid

    • Donation by John & Tessato Joe's page on 29/09/2016

      Well done!!

    • text donation

      Donation by Julie Lawrenceto Joe's page on 30/09/2016

      Such a beautiful girl! Good luck with your fundraising, I hope it brings you some comfort! Love and best wishes to you and your family! xx

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by Leah Edgleyto Joe's page on 30/09/2016

      You go girl! Lots of love and hugs! Xx

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by Alexandra Westto Joe's page on 29/09/2016

      Good luck Emma! X

      £10.00

      + £2.50 Gift Aid

    • text donation

      Donation by to Joe's page on 29/09/2016

      £5.00

      + £1.25 Gift Aid

    • Donation by Christina to Joe's page on 29/09/2016

      £5.00

      + £1.25 Gift Aid

    • Donation by Anonymousto Joe's page on 28/09/2016

      Good luck!!! Our son Vinnie is 18 months old with sma type 1 (on bipap) and emma and Karl helped loads when he was first diagnosed. X

      £10.00

      + £0.00 Gift Aid

    • text donation

      Donation by Stephen Hartleyto Joe's page on 28/09/2016

      Good luck and well done Emma. X

      £10.00

      + £2.50 Gift Aid

    • text donation

      Donation by to Joe's page on 28/09/2016

      £5.00

      + £0.00 Gift Aid

    • Donation by Kirstento Joe's page on 28/09/2016

      Good luck and enjoy it! Glad to be able to help this small charity especially after reading your story and as Kat told me they helped you so much!

      £20.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 28/09/2016

      £5.00

      + £0.00 Gift Aid

    • Donation by Hayley, Chris and Charlie xxto Joe's page on 27/09/2016

      £10.00

      + £0.00 Gift Aid

    • Donation by Anonymousto Joe's page on 27/09/2016

      Good luck Emma; what a fabulous idea.

      £10.00

      + £2.50 Gift Aid

    • Donation by Natalie (Crewe Station)to Joe's page on 27/09/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Joe's page on 27/09/2016

      Hope it goes well! And that the ball is amazing too !!

      £10.00

      + £0.00 Gift Aid

    • Donation by Helen, Simon and Blake to Joe's page on 21/09/2016

      Good luck - such a fab Mummy!

      £20.00

      + £5.00 Gift Aid

    • Donation by Great granny Tto Joe's page on 19/09/2016

      Lots of love xx

      £20.00

      + £5.00 Gift Aid

    • Donation by Kate Westto Joe's page on 18/09/2016

      Good luck! If you need any company on the London leg let me know... good excuse to skive off work for a couple of hours!

      £30.00

      + £7.50 Gift Aid

    • text donation

      Donation by to Joe's page on 18/09/2016

      £2.00

      + £0.00 Gift Aid

    • Donation by Anonymousto Joe's page on 17/09/2016

      £5.00

      + £1.25 Gift Aid

    • Donation by Anonymousto Joe's page on 16/09/2016

      £5.00

      + £1.25 Gift Aid

    • Donation by Maryto Joe's page on 16/09/2016

      Go Emma! Xx

      £20.00

      + £5.00 Gift Aid

    • text donation

      Donation by to Joe's page on 13/09/2016

      £1.00

      + £0.00 Gift Aid

    • Donation by Anonymousto Joe's page on 13/09/2016

      Good luck with your travels!

      £10.00

      + £2.50 Gift Aid

    • Donation by Becs and Dave to Joe's page on 12/09/2016

      Have a ball, at the ball.x

      £10.00

      + £2.50 Gift Aid

    • text donation

      Donation by to Joe's page on 13/09/2016

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by to Joe's page on 12/09/2016

      £1.00

      + £0.00 Gift Aid

    • Donation by Janto Joe's page on 11/09/2016

      Good Luck Em not that you will need it hope you have a great day dont forget to take your bucket for more donations on the way xxx

      £10.00

      + £2.50 Gift Aid

    • text donation

      Donation by to Joe's page on 11/09/2016

      £3.00

      + £0.00 Gift Aid

    • Donation by Judyto Joe's page on 10/09/2016

      From Judy Kempen

      £20.00

      + £0.00 Gift Aid

    • text donation

      Donation by Anonymousto Joe's page on 10/09/2016

      £1.00

      + £0.25 Gift Aid

    • Donation by Anonymousto Joe's page on 09/09/2016

      £5.00

      + £1.25 Gift Aid

    • Donation by Anonymousto Joe's page on 09/09/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Joe's page on 09/09/2016

      Good luck Emma x

    • Donation by Cat to Joe's page on 09/09/2016

      Good luck babe x

      $30.00

    • text donation

      Donation by to Joe's page on 09/09/2016

      £5.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 09/09/2016

      £3.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 09/09/2016

      £1.00

      + £0.00 Gift Aid

    • text donation

      Donation by to Joe's page on 09/09/2016

      £5.00

      + £0.00 Gift Aid

    • Donation by _frosted_petals_to Joe's page on 08/09/2016

      £5.00

      + £0.00 Gift Aid

    • Donation by Anonymousto Joe's page on 08/09/2016

      Good luck Emma - have no doubt you will do this X take a bucket for all those extra donations xxxx

      £30.00

      + £7.50 Gift Aid

    • Donation by Clairto Joe's page on 08/09/2016

      👰🏼 fab idea!! Xxx

      £10.00

      + £2.50 Gift Aid

    • Donation by Ann Hazeldineto Joe's page on 08/09/2016

      You are amazing

      £5.00

      + £1.25 Gift Aid

    • Donation by Sarah thulbornto Joe's page on 08/09/2016

      Wonderful idea from a loving mother and for a fabulous charity who helped a special beautiful little girl who will always be remembered xxx

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Joe's page on 08/09/2016

      £5.00

      + £1.25 Gift Aid

    • Donation by Samto Joe's page on 08/09/2016

      So inspirational xx

      £5.00

      + £0.00 Gift Aid

    • Donation by Clair to Joe's page on 08/09/2016

      Emma you are an amazing person xxxx

      £5.00

      + £1.25 Gift Aid

    • Donation by Dadto Joe's page on 08/09/2016

      So proud of you,

      £20.00

      + £5.00 Gift Aid

    • Donation by Anonymousto Joe's page on 07/09/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by Han, Dunc and Marthato Joe's page on 07/09/2016

      Have a fab journey X

      £10.00

      + £2.50 Gift Aid

    • Donation by Nadineto Joe's page on 07/09/2016

      Good luck emma xxx

      £10.00

      + £0.00 Gift Aid

    • Donation by Pippato Joe's page on 07/09/2016

      Bravo!

      £20.00

      + £5.00 Gift Aid

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      Donation by to Joe's page on 08/09/2016

      £3.00

      + £0.00 Gift Aid

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      Donation by Anonymousto Joe's page on 08/09/2016

      £1.00

      + £0.25 Gift Aid

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      Donation by to Joe's page on 08/09/2016

      £1.00

      + £0.25 Gift Aid

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      Donation by to Joe's page on 07/09/2016

      £1.00

      + £0.00 Gift Aid

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      Donation by Anonymousto Joe's page on 07/09/2016

      £1.00

      + £0.25 Gift Aid

    • text donation

      Donation by Anonymousto Joe's page on 07/09/2016

      £1.00

      + £0.25 Gift Aid

    • text donation

      Donation by to Joe's page on 07/09/2016

      £1.00

      + £0.00 Gift Aid

    • Donation by Jeannette Gilesto Joe's page on 07/09/2016

      Good luck! Looking forward to seeing photos of the dress journey! xx

      £10.00

      + £2.50 Gift Aid

    • text donation

      Donation by to Joe's page on 08/09/2016

      £1.00

      + £0.25 Gift Aid

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      Donation by to Joe's page on 08/09/2016

      £2.00

      + £0.00 Gift Aid

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      Donation by to Joe's page on 08/09/2016

      £3.00

      + £0.00 Gift Aid

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      Donation by to Joe's page on 08/09/2016

      £10.00

      + £0.00 Gift Aid

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      Donation by to Joe's page on 07/09/2016

      £5.00

      + £0.00 Gift Aid

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      Donation by to Joe's page on 07/09/2016

      £1.00

      + £0.25 Gift Aid

    • text donation

      Donation by Rachel Shawto Joe's page on 07/09/2016

      £1.00

      + £0.25 Gift Aid

    • text donation

      Donation by to Joe's page on 07/09/2016

      £3.00

      + £0.75 Gift Aid

    • text donation

      Donation by Anonymousto Joe's page on 07/09/2016

      £1.00

      + £0.25 Gift Aid

    • text donation

      Donation by to Joe's page on 07/09/2016

      £1.00

      + £0.25 Gift Aid

    • Donation by Angela Tresloveto Joe's page on 07/09/2016

    • Donation by Judeto Joe's page on 07/09/2016

      Hope you raise loads - and you're travelling to where I went to School! Have fun x

      £10.00

      + £2.50 Gift Aid

    • Donation by Karen & Bobto Joe's page on 07/09/2016

      Can't wait to see the pictures Emma. Lots of love from me and Bob x

      £10.00

      + £2.50 Gift Aid

    • Donation by Ellyto Joe's page on 07/09/2016

      Xx

      £10.00

      + £2.50 Gift Aid

    • Donation by Anonymousto Joe's page on 07/09/2016

      £10.00

      + £2.50 Gift Aid

    • Donation by Sally Whittockto Joe's page on 07/09/2016

      Wishing you all the very best Emma 😊

      £5.00

      + £1.25 Gift Aid

    • Donation by Melksham Mateysto Joe's page on 07/09/2016

      Our brave, but slightly mad and crazy niece, you go girl! Look forward to seeing you at the Ball xx

      £20.00

      + £5.00 Gift Aid

    • Donation by (Aunty) Rosa xxto Joe's page on 07/09/2016

      I would love to travel across London with you as a Bridesmaid? In my original and beautiful purple dress...

      £20.00

      + £5.00 Gift Aid

    • Donation by Ruth Smullento Joe's page on 07/09/2016

      All the very best x

      £5.00

      + £1.25 Gift Aid

    • Donation by Lisa to Joe's page on 07/09/2016

      Xxx

      £10.00

      + £2.50 Gift Aid

    • Donation by Janet xxto Joe's page on 07/09/2016

      Good luck Emma

      £10.00

      + £2.50 Gift Aid

    • Donation by Kelly & Samto Joe's page on 07/09/2016

      Wish I could join you but I don't have a wedding dress and I'll be on holiday. But I shall look forward to the photos!

      £20.00

      + £5.00 Gift Aid

    • Donation by Love Bec, mike and Ollie xto Joe's page on 07/09/2016

      Go Emma! Great idea!

      £20.00

      + £5.00 Gift Aid

    • Donation by Anonymousto Joe's page on 06/09/2016

      Lots of love xx

      £20.00

      + £5.00 Gift Aid

    • text donation

      Donation by Cathy Wilsonto Joe's page on 07/09/2016

      Good Luck x

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by Valerie Hartleyto Joe's page on 07/09/2016

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by Anne Thomsonto Joe's page on 07/09/2016

      What a wonderful idea in memory of your beautiful daughter.

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by to Joe's page on 07/09/2016

      £5.00

      + £1.25 Gift Aid

    • text donation

      Donation by to Joe's page on 07/09/2016

      £1.00

      + £0.25 Gift Aid

    Charities we're helping 1

    • ACT for SMA

      ACT for SMA

      The Ally Cadence Trust provides support to families affected by Spinal Muscular Atrophy Type 1. Children with SMA Type 1 have limited movement and may have breathing difficulties. We offer many items of specialist equipment to them that are not readily available on the NHS

    Events we're doing 1

      • 30Sep

        Getting cinderEmma the ball

      • Other personal challenge