Remembering Isla Tansey

Our fundraising achievements in memory of Isla Tansey

  • Remember

    Amount we’ve raised in Isla ’s memory $1,234.78

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    Our fundraising pages

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    Charities we're helping

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    Abbie's Army

    Abbie's Army

    Our latest donations

    49 skip to donations section
    • Donation by Simon Bunker

      Well done!😀

      £10.00

      + £0.00 Gift Aid

    • Donation by Bhavini Raikundalia

      All the best with raising money and awareness

      £20.00

      + £5.00 Gift Aid

    Events we're doing

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    • 04Aug

      Prudential RideLondon 2019

    Our fundraising pages 1

    • IslaSmilerDIPG-RideLondon100

      In August 2017, my niece Isla Tansey woke up and was unable to walk. After many traumatic and invasive treatments, surgery and radiotherapy, she was diagnosed as having glioblastoma multiforme (GBM) with diffuse intrinsic pontine glioma (DIPG) mutation – this meant there was no further treatment options for her, and the tumour in her spine had left her paralysed from the chest down.

      Isla sadly died in July of last year, but not before turning a horrible and almost unbearable turn of events into something with a beauty only she could have inspired. Though there were a thousand little precious moments the whole family enjoyed with her during this sad time, the biggest outward manifestation of our attitude to the whole affair was the #Islastones movement, which began as something Isla could enjoy from her bed when she was unable go out without great effort. 

      The idea of #Islastones was simple. Paint a rock or stone, make it beautiful and hide it somewhere to be found later - but not before you’d photographed it and shared it with Isla via Facebook. This ‘Photo-Post-Rehide’ chain allowed Isla to come into contact with hundreds, if not thousands of people even though it was a struggle to get her out of the house. It also saw stones decorated with her name travel all over the globe. She loved looking at them and seeing where they went - but, most of all, I think she loved that her name was on every single one. 

      I came to see #Islastones as a perfect metaphor for how Isla dealt with not being able to walk, and her gradual deterioration of health: turning something hard and ugly into something that couldn’t fail to make you smile. That was her gift to us all.  

      As a family, and with the breathtaking efforts of an army of friends, we have continued to raise money in Isla’s name since her passing - teaming up with the DIPG-focused campaign Abbie’s Army, which looks to shine a light on the awful prognosis for children diagnosed with that form of tumour, and fund research into the condition.

      Our long-term aim is to fund an ‘Isla Smiler’ DIPG researcher to study the condition for two years, hopefully working towards better outcomes for those diagnosed in the future. Day-to-day, however, we hope to raise awareness of DIPG and the toll it takes.  

      Isla always thought it was funny when her Uncles turned up in cycling kit to see her - she especially enjoyed me turning up on Easter Sunday with a backpack full of Easter Eggs - and I think that she would love that we now have kit with her name on it.  

      Having lost my mother to cancer little more than six months before Isla’s passing I know that cycling helped me to deal with a difficult time, so it’s good that now I can do something with it in her name. 

      This is Isla’s legacy and we hope you are proud to be part of it, please donate what you can. 

      Thanks, 

      John Moore. 


      About DIPG:   DIPG has a 0% survival rate, only 10% of children survive 2 years following their diagnosis and less than 1% survive for 5 years.  The average survival is 9 months from diagnosis, this needs to change and with your help maybe we can make a difference for other children in the future. We have teamed up with Abbie’s Army an official charity to help fund a dedicated ‘Isla Smiler DIPG Trials Researcher’. 

      We need to raise £73,000 to cover this position for 2 years & with your help we can do it! 

      About DIPG Research:   Abbie’s Army has been supporting Professor Chris Jones’ laboratory for some time at the Institute of Cancer Research. They have been funding, processing and analysing DIPG samples from the UK BIOMEDE trial for DIPG- so far there have been 25 patients processed. However, we now need to do MORE to progress this research. 

      Professor Jones’ laboratory is becoming the UK biology reference centre for more DIPG trials, there is now a need to have a dedicated DIPG Trials Scientific Officer in his laboratory to expand the ICR’s capacity and continue the work not only on the BIOMEDE trial, but to include children’s samples from other trials in the UK and Europe.  

      Abbie’s Army, working alongside #Islastones want to fund this new researcher who will process the trial samples and attempt to establish both 2D and 3D cell cultures in the laboratory. They will ensure the models undergo molecular profiling and carry out bespoke drug screening needed to inform the treating clinicians of the children enrolled. 

      By supporting this research you will be playing a major part in efforts to develop tailored treatments for children with DIPG, in the fastest possible time, with maximum benefit and minimum side-effects. 

      A targeted treatment is also a ‘kinder’ treatment. 

      “Our understanding of DIPG is rapidly improving thanks to collaborations between scientists, clinicians, funding bodies and families around the world who are determined to defeat these diseases. Thanks to charities such as Abbie’s Army, I truly believe that we are on the cusp of real improvements in the survival of children with DIPG.” – Professor Chris Jones, ICR 

      About #islastones:

      In March we started to decorate stones as an activity for Isla to enjoy with her friends.  A friend brought some Sharpies and some stones around and we each decorated one and asked some friends to hide them nearby.  We asked them to post a photo for Isla so she could see where her stones had gone.  We set up the #islastones facebook page so we could see the stones.  Within weeks the group had grown beyond our expectations.  

      Isla absolutely loved seeing everyones smiles when they posted photos of what stones they had found.  During this time Isla’s pain became more controlled and she was bravely hoisted out of bed into a chair.  This new found freedom allowed Isla and her family to leave the house and make some even more special memories and allowed her to join in with #Islastones, which brought her lots of joy.  Every day Isla received beautiful gifts and stones from people who had joined the group and taken Isla into their hearts. Isla was interviewed on two occasions by the BBC, her dream was to become famous and with over 40,000 people at this point in her group she certainly felt it.  Her film can be viewed by clicking this link:

      https://www.bbc.co.uk/news/uk-england-leicestershire-44793144

      Since launching #islastones stones have been hidden all around the world, including the Taj Mahal; New Zealand, North Pole, Mexico and a very special wooden stone at the antarctic.









      icon for Cycling

      Total so far:

      $1,292.87

    Donations made in memory of Isla Tansey49

    • Donation by Simon Bunkerto John's page on 03/09/2019

      Well done!😀

      £10.00

      + £0.00 Gift Aid

    • Donation by Bhavini Raikundaliato John's page on 13/08/2019

      All the best with raising money and awareness

      £20.00

      + £5.00 Gift Aid

    • Donation by carol scarboroughto John's page on 07/08/2019

      Well done Both, hope the legs and bums are recovering!

      £10.00

      + £2.50 Gift Aid

    • Donation by Shaun Isonto John's page on 06/08/2019

      £20.00

      + £5.00 Gift Aid

    • Donation by carole Sheltonto John's page on 04/08/2019

      Well done Guys!

      £20.00

      + £5.00 Gift Aid

    • Donation by MR PICKERINGto John's page on 04/08/2019

      Well done to all involved! Keep going!

      £10.00

      + £2.50 Gift Aid

    • Donation by Katherine Tanseyto John's page on 04/08/2019

      WELL YOU PAIR YOU ARE AWESOME 😎 xx

      £10.00

      + £2.50 Gift Aid

    • Donation by Amanda Thomasto John's page on 04/08/2019

      Good luck with the race!

      £50.00

      + £0.00 Gift Aid

    • Donation by Anonymousto John's page on 04/08/2019

      £10.00

      + £0.00 Gift Aid

    • Donation by Anonymousto John's page on 04/08/2019

    • Donation by Lynne Colbrookto John's page on 04/08/2019

      30 mins til your start time today. Plenty of drinks, energy bars and sudocream and you'll be fine. Go team Isla's Uncles lol 😁

      £20.00

      + £0.00 Gift Aid

    • Donation by Mark Summersto John's page on 03/08/2019

      Steady as you go my lovlies! Just keep singing,"Round round wheels going Round round round Down up Pedals going Down up down But I got to get across to The other side of town Before the sun goes down"

    • Donation by Linda & John Webbto John's page on 03/08/2019

      Well done guys...we know you can do it. You should be very proud of yourselves...a fantastic tribute to our Isla Smiler! Lots of love ❤️ xxx

      £20.00

      + £5.00 Gift Aid

    • Donation by Mowgli Beckerto John's page on 03/08/2019

      Good luck 😀

      £20.00

      + £5.00 Gift Aid

    • Donation by Barry Sharpto John's page on 02/08/2019

      Great cause, good luck

      £30.00

      + £7.50 Gift Aid

    • Donation by Liza Boylinto John's page on 02/08/2019

      Good luck both! Love the Boylin’s x

      £10.00

      + £2.50 Gift Aid

    • Donation by Chris Northageto John's page on 02/08/2019

      Good Luck Boys!

      £40.00

      + £10.00 Gift Aid

    • Donation by Luke Evansto John's page on 01/08/2019

      Good luck chaps!

      £20.00

      + £5.00 Gift Aid

    • Donation by Suzanne Walkerto John's page on 30/07/2019

      Good luck John & Adam. You'll smash it x

      £20.00

      + £0.00 Gift Aid

    • Donation by Diane Saundersto John's page on 30/07/2019

      Good luck boys! Xx

      £10.00

      + £2.50 Gift Aid

    • Donation by Julie Hollinsto John's page on 30/07/2019

      Great stuff guys! Ride like the wind!! Xx

      £20.00

      + £5.00 Gift Aid

    • Donation by Deborah Hollinsto John's page on 30/07/2019

      Have a good ride guys! Love Debs, Dave and Iona xxxx

      £10.00

      + £2.50 Gift Aid

    • Donation by Eddie Asberyto John's page on 29/07/2019

      Have a good ride fellas. Remember to do sport properly!

      £10.00

      + £2.50 Gift Aid

    • Donation by Michael Thomasto John's page on 29/07/2019

      Well done Adam. Give it the beans!

      £30.00

      + £7.50 Gift Aid

    • Donation by Emma Powdrillto John's page on 29/07/2019

      Good luck guys x

      £10.00

      + £2.50 Gift Aid

    • Donation by Jenny Hatfieldto John's page on 29/07/2019

      Good luck John & Adam! Have a fantastic day and don't forget the vasaline! luv Jenny & Keith xxx

      £20.00

      + £0.00 Gift Aid

    • Donation by Sally-Ann Mooreto John's page on 27/07/2019

      Well done John

      £100.00

      + £25.00 Gift Aid

    • Donation by Edward Coleto John's page on 27/07/2019

      Good Luck

      £30.00

      + £7.50 Gift Aid

    • Donation by Joanne Curtisto John's page on 27/07/2019

      Good Luck! Jo and Shaun x

      £10.00

      + £2.50 Gift Aid

    • Donation by Natalie Maloneto John's page on 26/07/2019

      Go you guys, great effort - wishing you all the best

    • Donation by Fran Adriaanzento John's page on 26/07/2019

      Ride hard boys! Proud of you both !! This is a wonderful tribute to a beautiful girl, Isla who we love and miss loads xxx

      £20.00

      + £0.00 Gift Aid

    • Donation by Cathy Neesonto John's page on 26/07/2019

      Good luck x

      £20.00

      + £5.00 Gift Aid

    • Donation by Tony Clellandto John's page on 19/07/2019

      Good luck

      £20.00

      + £5.00 Gift Aid

    • Donation by Shelley Vickersto John's page on 15/07/2019

      Go John

      £20.00

      + £5.00 Gift Aid

    • Donation by Chris Nealto John's page on 13/07/2019

      Good Luck mate hope it all goes smoothly

      £20.00

      + £5.00 Gift Aid

    • Donation by Colette Fulleyloveto John's page on 12/07/2019

      Good luck John

      £20.00

      + £5.00 Gift Aid

    • Donation by Sam Estillto John's page on 11/07/2019

      Good luck to you both!

      £10.00

      + £2.50 Gift Aid

    • Donation by Carly Flattto John's page on 11/07/2019

      Good Luck Adam :-) You'll smash it xx

      £12.50

      + £3.13 Gift Aid

    • Donation by Aimee Maguireto John's page on 11/07/2019

      Good luck Adam!

      £12.50

      + £3.13 Gift Aid

    • Donation by Hazel Staceyto John's page on 11/07/2019

      Good Luck John. Xxxx

      £20.00

      + £5.00 Gift Aid

    • Donation by William Dunnto John's page on 10/07/2019

      Good luck!

      £25.00

      + £6.25 Gift Aid

    • Donation by Nicole Creaseyto John's page on 09/07/2019

      Best of luck!

    • Donation by Sylvia Batesto John's page on 07/07/2019

      Enjoy the ride John and here's to more money raised for the cause x

    • Donation by Daniel Geddesto John's page on 02/07/2019

      £10.00

      + £2.50 Gift Aid

    • Donation by James Colbrookto John's page on 01/07/2019

      Top tip.....lots of Sudocrem for the chammy rash!

      £20.00

      + £5.00 Gift Aid

    • Donation by Helena Appelto John's page on 30/06/2019

      £10.00

      + £0.00 Gift Aid

    • Donation by Anonymousto John's page on 29/06/2019

      Good riding, John. All the best, know you'll smash it. KP

      £30.00

      + £7.50 Gift Aid

    • Donation by Simon Brewto John's page on 28/06/2019

      xxx

      £25.00

      + £6.25 Gift Aid

    • Donation by Ed BRYNINGto John's page on 28/06/2019

      #5

      £30.00

      + £7.50 Gift Aid

    Charities we're helping 1

    • Abbie's Army

      Abbie's Army

      Each year 450 UK children are diagnosed with brain cancer. Among these there is a tumour so DEADLY there is NO effective treatment or CURE - Diffuse Intrinsic Pontine Glioma or DIPG. Responsible for 80% of ALL brain tumour deaths we aim to raise vital research funds & give HOPE to DIPG families.

    Events we're doing 1

      • 04Aug

        Prudential RideLondon 2019

      • Cycling