sarah griffiths

sarah's Titan zip wire challange

Fundraising for Ichthyosis Support Group
£410
raised of £200 target
by 20 supporters
Donations cannot currently be made to this page
Ichthyosis Support Group

Verified by JustGiving

RCN 1142457
We support everyone affected by ichthyosis to improve their quality of life

Story

I have Ichthyosis and am a Director of the Ichthyosis Support Group. Myself and a colleague (Liz) set up summer camp last year with funding from some fantastic charities that truly believed in us And the camps. We have 4 all around the country this year and all are nearly full to capacity.

I have seen how the camps have helped the children become more confident, happy, enthusiastic and certainly more postive towards their condition. 

The funding we have runs out this year and I know it would break a few hearts if the camps ceased! I would love to give more children the opportunity to attend camp so please dig deep! 

All monies I raise will go towards camp 2016 

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About the charity

Ichthyosis Support Group

Verified by JustGiving

RCN 1142457
The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.

Donation summary

Total raised
£410.00
+ £100.00 Gift Aid
Online donations
£410.00
Offline donations
£0.00

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