Story

Here is where just a few minutes of your time can change this little girl's life forever.  Turning Scarlett's Wish2Walk from a dream into a reality.

 Hello, my name is Scarlett, I am 9 years old and I have Cerebral Palsy. I have just been accepted to have a life changing operation called Selective Dorsal Rhizotomy at St. Louis Children's Hospital in America. You can read about this amazing operation here:

http://www.stlouischildrens.org/content/medservices/aboutselectivedorsalrhizotomy.htm

 
 
Here's my story...

 

When I was born I had a really tough time. I entered the big wide world 8 weeks early weighing 4lb 7oz and I had to be resuscitated as I wasn't breathing on my own. As a result of this, my brain and my other internal organs were starved of oxygen and I sustained a bleed on my brain. I was rushed to special care where I was wired up to life support and lots of other machines. The next day, the doctor came to see me to check me over and listened to my heart, he heard a murmur and ordered for me to have an heart scan. The doctor then told my Mummy and Daddy that I had a major heart defect called Transposition of the Great Arteries (TGA for short) and I urgently needed an operation. At just 2 weeks old, now weighing 5lb and the smallest baby the surgeon said he had performed this operation on, I had life-saving open-heart surgery to switch my arteries to the correct position. Although my heart operation was a success, the brain damage that I had sustained at birth had resulted in me being diagnosed with PVL and this is the most common cause of Cerebral Palsy. 

Having this condition means that the muscles in my legs are very tight and often quite painful and therefore I am unable to run around in the garden with my two younger sisters. I am also unable to stand unaided and I need assistance to move in and out of positions. I struggle on a daily basis with simple tasks that we all take for granted like dressing and undressing, using the bathroom. I have trouble in sitting positions, like sitting crossed legged or long sitting, without experiencing pain or losing my balance. I also wake up on a nightly basis with painful leg cramps and spasms. 
 
 
I dream that one day I will not have to use my walking frame or wheelchair anymore and that I will be able to play in the playground with all my school friends and run around just like them. Sometimes it makes me so sad to sit watching them because it really is hard work when you have this condition and I get very worn out trying to keep up with them.
 
 
SDR is not available on the NHS so for me to be able to have this operation, we will need to raise £65,000 to cover the cost of the operation and some of the intensive physiotherapy that I will need afterwards, so please can you help me raise this amount so that Mummy and Daddy can take me to America to change my life forever.
The surgeon, Dr Parks, has said that if I have the operation then I will ‘walk independently in all environments with improved balance and endurance, have reduced spasticity, have better sitting and standing posture, my standing balance and level of comfort will improve'. 
 
Dr Parks administers the complex operation that destroys the 'bad' nerves leaving the good ones. This operation results in correct messages being sent to the legs and this helps to loosen the tight muscles to allow me to walk. The cutting of the nerves in the spinal cord is a complex job requiring the most skilled surgeons and we only have one chance to get it right. For this reason this 'specialist' hospital in the USA is the most likely place in the world to make a life changing difference to my life.

Thank you so much for taking the time to read my story and please support me by making a donation. It does not matter how small your donation is, any amount will go towards "making my wish come true". xxx

We would like to say a huge thank you to everyone who has donated and helped us on our fundraising journey for our daughter Scarlett.

Because we have reached our target for Scarlett's operation and there are a number of events still yet to take place, our friends and family that are fund raising for Scarlett all want Scarlett to benefit from the money they raise therefore we have been advised to up our target so that the money raised for scarlett will go towards her ongoing rehabilitation program after her operation. The amount of physical therapy that Scarlett will require after her surgery is just as important, if not more so, then the operation itself. 

Again we thank you all sincerely for the fantastic amount of support you have all given us, we really couldn't of done it without  your help. 

We will be forever grateful. 

Love from the Hewitt family xxx



Thanks for taking the time to visit my JustGiving page. 
If we exceed the target amount or if we do not raise enough, or if the funds cannot be used for any other reason, they will go to Tree of Hope to help other sick children.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

Updates 43

Thank you to the prison service charity fund for donating £600 to Scarlett's campaign. We are very grateful for your donation. Your generosity means we are able to book Scarlett onto another physiotherapy course next year 😊 Your cheque will will added to the offline section.

14/01/15 06:23

So we would like to say a very big thank you to each and everyone who has supported our daughter on her SDR journey. If it wasn't for all your support we wouldn't of been able to give Scarlett this life changing opportunity, so for this we will be forever grateful😊😊

11/11/14 02:37

Scarlett has had her operation and is doing very well, she is in need of a lot of intense physiotherapy to gain the maximum benefit from having the operation and needs to do slot of muscle strengthening, but she is very determined so she will get there with all our support. Con'd

11/11/14 02:30

Thank you very much to Atwood Primary Academy, pupils and parents for your cheque donation for £200, raised from the sponsored silence you held for Scarlett, requested by one of your pupils, Scarlett's friend Bliss. We greatly appreciate your support.😊😊

21/10/14 02:04

A Very big thank you to Barclays Bank west Wickham for match funding Dans cake & coffee morning held at that branch. Your £1000 match fund has been added to our off line donations. Thank you very much for your support.

15/09/14 06:46

Raising money for

Tree of Hope

Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

Tree of Hope offers hope to the families of sick children in the UK who need specialist medical surgery, treatment, therapy and equipment in order to free them from suffering, giving a better quality to their young lives. England & Wales 1043092 Scotland SCO4261 http://www.treeofhope.org.uk

Raising money for

Run by Tree of Hope

Charity Registration No. 1149254 In Scotland SC042611

Donations 1334

Good luck Paul!

Donation by Emma McAleese on 04/08/15

£20.00

+ £5.00 Gift Aid

Expecting sub 4 hours!

Donation by Paul Jones on 03/08/15

£25.00

+ £6.25 Gift Aid

Lewey.Very impressed, Hope all goes well. Watch those Swans! Higgy and Mette

Donation by david higgins on 03/08/15

£25.00

+ £6.25 Gift Aid

Good Luck, Paul and Good Luck Scarlett from a fellow Crystal Palace Fan!

Donation by Jo Christie-Smith on 03/08/15

£20.00

+ £5.00 Gift Aid

Best of luck Paul!

Donation by Michael Twomey on 03/08/15

£25.00

+ £6.25 Gift Aid

Well Done Scarlett.

Donation by Anonymous on 03/08/15

£5.00

+ £1.25 Gift Aid

Good Luck Paul.

Donation by Tricia Weaver on 03/08/15

£10.00

+ £2.50 Gift Aid

good luck paul

Donation by guy and jen on 02/08/15

£25.00

+ £6.25 Gift Aid

Well done to all who took part in the CPFC walk. Sorry I couldn't join you. Just wanted to give a little for a great cause.

Donation by Andy Lobo on 01/08/15

£20.00

+ £5.00 Gift Aid

Donation by Jim Hall on 23/07/15

£20.00

+ £5.00 Gift Aid

Good luck Paul, keep your mouth shut....

Donation by Caroline Leverett on 14/07/15

£20.00

+ £5.00 Gift Aid

Best of luck Paul. Such a wonderful cause mate. Dont swallow any of the Thames!

Donation by Bill Edrich on 13/07/15

£25.00

+ £6.25 Gift Aid

Hope all your wishes come true Scarlett!! :-) ...and good luck Paul!!

Donation by Mark C on 13/07/15

£20.00

+ £5.00 Gift Aid

Wishing you all the best Scarlett. Well done Paul.

Donation by Terry Allen on 10/07/15

£25.00

+ £6.25 Gift Aid

Good luck with your swim Paul, and fingers crossed for a successful operation for Scarlett.

Donation by Gareth on 10/07/15

Donation by Anonymous on 10/07/15

£10.00

+ £2.50 Gift Aid

All the best for the future

Donation by Rebecca Eaton on 09/07/15

£10.00

Donation by Anonymous on 23/05/15

Not much but hope it helps

Donation by Russell on 12/05/15

£10.00

Good luck Lisa x

Donation by Jonathan Edwards on 08/05/15

£25.00

Good luck

Donation by Nitesh Jobanputra on 15/01/15

£25.00

+ £6.25 Gift Aid

text donation

Donation by Anonymous on 11/12/14

£10.00

via sms

Donation by Lee Harvey on 23/11/14

£20.00

+ £5.00 Gift Aid

Money raised from our Brownies Got Talent evening

Donation by 10th Coulsdon Brownies on 17/10/14

£180.00

+ £45.00 Gift Aid

The nuts challenge sponsorship

Donation by Andrew Masini on 06/10/14

£195.00

+ £48.75 Gift Aid

Donation summary

  • * Online donations£68,318.52
  • Offline donations£15,295.00
  • Text donations£833.00
  • Total raised£84,446.52
  • Gift Aid£14,114.46

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