Hi everyone,
As many know, my Multiple Sclerosis causes my mobility to be challenged. It maybe physically happening to me but affects everyone close.
Dave is a keen runner and we’re both entering the Yorkshire Marathon on Sunday October 20th (a first for both of us). How! you cry?
Dave’s running and pushing me in a running chair. Because of the lack of availability and cost ($4k from America) Dave is making one bespoke for me (with help from his friend, Glenn who has kindly welded the frame). I’m so proud of him for not only training but making a chair so I can take part.
As we have two entries, we’re collecting for the MS Society and a local hospice called St Leonard’s Hospice in York (which has done lots for me because of my MS).
We don’t have a target of time or donations.
Our only aim is to get around the course, raise awareness about this progressive disease, Multiple Sclerosis and raise monies to help those affected. This October, the MS Society are publicly launching their biggest ever campaign called #StopMS.
“The campaign aims to raise £100m to find treatments for everyone with MS. Research has got to a critical point - we can see a future where nobody needs to worry about their MS getting worse” (taken from the latest - Summer 2019 - MS Matters - MS Society magazine).
The MS Society went to Westminster to raise awareness about the progress in MS research and the public launch of #StopMS appeal. It struck a cord personally, as a lady who went to the event said “my hope is for a cure for MS so I won’t have to consider my son being a young carer”.
Any spare pennies would be gratefully received via our online donation (we’ve had to create two fundraising pages) or via the traditional way. Obviously traditionally donating is a big thank you but whatever you are doing, consider raising awareness of MS and any spare cash to help find a cure. One idea, is do you have any old pound coins hanging around? It might not be legal tender but did you know banks still accept them?
Big big thank you for everyone who believes in us. It means a lot.
MS is a cruel, progressive, individual, pig of a disease and currently there is no cure.
Everyone has their challenges, and you don’t know what they are. This is ours.
OK, I was never going to be like Mo but without my rock, Dave, I would simply wouldn’t be able to do so many things like this marathon. It was his idea to do this marathon together. His words “we are a team”.
I’ve been dealing with being a mummy with MS. I found very little on looking after yourself and a little one at the same time. I’m no expert on mummy or MS stuff but write from a MS Mummy perspective.
I write for the MS Society “MS Matters” magazines (to receive them visit MS Society website). Below is my latest article and details to find out more, if interested.
I’ve written for other MS charities like the MS Trust MS UK, Shift MS ( I’m taking over their Twitter feed on 23rd November) The World vs MS, also wrote about being a bride with MS which was within the UK wedding guide as well as featured in local media (York Press), parenting and local outlets.
You can follow or find my articles:
Poorlyparents.wordpress.com
Poorlyparents on Facebook
Mummywithmsjmhc on Twitter
Plug over and on a serious note, remember you could be like me and wake up wondering what is going on.
For more details on MS, the Stop MS campaign or St Leonard’s, visit:
https://www.mssociety.org.uk/
https://www.stleonardshospice.org.uk/
Thank you for listening and big big thank you if you able to help stop MS.
