I've opted to do a tandem skydive for RobsARTTT on Sunday 9th August 2020, along with my sister Tara, because it's something I've always wanted to do and because I really want to help raise awareness of such a rare and life-threatening disease, in the hopes that young people will get taken more seriously when they're suffering and get diagnosed more quickly as a result.

Thank you for taking the time to visit my JustGiving page and a massive thank you for choosing to donate. It really means a lot.

You can read Rob Holland's story at http://www.robsarttt.co.uk/.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.