Story
Hi Everybody!!!
Thanks for taking the time to visit my JustGiving page!
My Name is Victor, i am 34 years old and i will run the London Marathon 2017 for Stickler Syndrome uk!
This year, i am doing London, Chicago, Berlin, New York and Chinese great wall marathons!
I try to combine my passion of running with the support all along of those amazing charities.
I had already supported many charities like Mo Farah fondation or Laureus sport for good..
Stickler Syndrom uk is a charity that's been with the London Marathon since the very beginning...
This is small charity run by volunteers on a very limited budget that's why every help is welcome!
Stickler syndrome is a common but little recognised genetic disorder that causes eye abnormalities, hearing loss, and joint problems.
One in 10,000 people are affected.
Stickler Syndrome UK was founded in 1989. Early diagnosis of those affected is vital and SSUK makes a difference by raising awareness amongst medical professionals to ensure both early diagnosis and effective treatment.
Small charities need support as much as some of those we are more familiar with; so a small donation from you, boosts my motivation to train and helps those who are faced with dealing with this genetic disorder. Thanks so much for supporting us!!
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.