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XP Support Group

We support XP patients and raise money to provide UV proof clothes and window film

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About XP Support Group

We support families with Xeroderma Pigmentosum, a rare genetic defect that causes skin cells to be damaged by UV light which in turn leads to skin cancer. Patients are 1000 times more likely to develop skin cancer. Our Owl Patrol night camp gives families respite in a UV protected environment.

http://xpsupportgroup.org.uk/

info@xpsupportgroup.org.uk

XP Support Group Registered charity number 1075302

XP Clinic Team raising funds for 1st International Conference and Camp

The XP clinic team have done various fundraising activities for us, and their next challenge is to do a Zip-wire day on 21 September. They aim is to raise £5,000 for the International Conference.

£1,130.46

£5,000.00

raised

target

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Donation message

"Thank you for supporting Covance's Rare Disease Day event and thank you for the work XP support do everyday."

Anonymous donated

£120.00 + £0.00 Gift Aid

Donation message

"Thank you Sandra for a truly inspirational presentation to us yesterday as part of our Rare Diseases Day"

Alice Wilkinson donated

£30.00 + £7.50 Gift Aid

Donation message

"Dear Sandra Here is our contribution and thank you for our participation in the Owl Patrol week-end, for the lovely food and lifts to and from the station with some of the history of the town as well!"

Patricia Grocott donated

£30.00 + £7.50 Gift Aid

Donation message

"Christmas birds"

Isabel Garrood donated

£50.00 + £12.50 Gift Aid

Donation message

"Donation done on behalf of Sophie Momen."

Anonymous donated

Donation message

"Owl Patrol Payment"

Sarah Madden donated

£55.00 + £0.00 Gift Aid

Hazel Avery has raised $731.76 so far

I'm Climbing Ben Nevis to raise money for Hazel Avery because I have XP and I want to raise money and awareness

13 Supporters