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XP Support Group

We support XP patients and raise money to provide UV proof clothes and window film

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We support families with Xeroderma Pigmentosum, a rare genetic defect that causes skin cells to be damaged by UV light which in turn leads to skin cancer. Patients are 1000 times more likely to develop skin cancer. Our Owl Patrol night camp gives families respite in a UV protected environment.

http://xpsupportgroup.org.uk/

info@xpsupportgroup.org.uk

XP Support Group Registered charity number 1075302

XP Clinic Team raising funds for 1st International Conference and Camp

The XP clinic team have done various fundraising activities for us, and their next challenge is to do a Zip-wire day on 21 September. They aim is to raise £5,000 for the International Conference.

£1,130.46

£5,000.00

raised

target

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Donation message

"Dear Sandra Here is our contribution and thank you for our participation in the Owl Patrol week-end, for the lovely food and lifts to and from the station with some of the history of the town as well!"

Patricia Grocott donated

£30.00 + £7.50 Gift Aid

Donation message

"Christmas birds"

Isabel Garrood donated

£50.00 + £12.50 Gift Aid

Donation message

"Donation done on behalf of Sophie Momen."

Anonymous donated

Donation message

"Owl Patrol Payment"

Sarah Madden donated

£55.00 + £0.00 Gift Aid

Donation message

"Hi Sandra, here's the payment for my sister Oumel :)"

Anonymous donated

€25.00 + €0.00 Gift Aid

Donation message

"With love from family and friends of Celia and Daniel."

Daniel Avery donated

£1,470.00 + £367.50 Gift Aid

Lucas Avery has raised $857.62 so far

I'm I am doing this to raise awareness of XP for Lucas Avery because its very rare and not many people know about it

34 Supporters