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We support families with Xeroderma Pigmentosum, a rare genetic defect that causes skin cells to be damaged by UV light which in turn leads to skin cancer. Patients are 1000 times more likely to develop skin cancer. Our Owl Patrol night camp gives families respite in a UV protected environment.
http://xpsupportgroup.org.uk/
info@xpsupportgroup.org.uk
XP Support Group Registered charity number 1075302
The XP clinic team have done various fundraising activities for us, and their next challenge is to do a Zip-wire day on 21 September. They aim is to raise £5,000 for the International Conference.
£1,130.46
£5,000.00
raised
target
"With love from family and friends of Celia and Daniel."
Daniel Avery donated
£1,470.00 + £367.50 Gift Aid
"In lieu of a wedding gift for Dan and Celia. Great idea guys and what a wedding! Great charity nominated by a great couple, many thanks guys."
Lucas Avery donated
£200.00 + £50.00 Gift Aid
"In lieu of a wedding gift for Dan and Celia - such a wonderful gesture Dan. Happy Wedding Day on 30th June - congratulations and very best wishes to you both! Love from Alan and Janet"
J Crawford donated
£50.00 + £0.00 Gift Aid
"Sunflowers"
Anonymous donated
£3.00 + £0.75 Gift Aid
"Thank you Is for making me aware of this challenging condition."
Victoria Smith donated
"Great photos of the conference!"
£20.00 + £5.00 Gift Aid
Jessica Todd has raised $724.87 so far
I'm I am cycling 100 miles & over lots of hills for Jessica Todd because my family has dedicated so much time to this cause
Sarah Randall has raised $397.41 so far
I'm We are going to climb Ben Nevis for Sarah Randall because its a cause close to our hearts
