Myla was diagnosed with Sturge-Weber Syndrome (SWS) at 8 months old. SWS is a rare disease that not only causes the commonly seen Port Wine Birthmark on the face, but it also affects the brain (seizures) and the eyes (glaucoma). There is not a cure, yet.

Through your support we hope to raise funds to continue research that will lead us to better treatments for this condition and ultimately a cure.

Join us in celebrating Myla's extraordinary life and help find the answers needed to overcome this rare disease!