$3,378

raised by 15 supporters
Sturge-Weber Foundation

SWF General Donation

Help the Sturge-Weber Foundation continue to improve the quality of life for patients and families as well as continue vital research on Sturge-Weber Syndrome and related Port Wine Birthmark conditions!
Charity Registration No: 742485813
About the charity

Sturge-Weber Foundation

We exist to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions. We support them with collaborative education and advocacy in tandem with translational research as we promote effective management and awareness.

Story

Support, integrity, and vision.

These qualities have distinguished the Sturge-Weber Foundation (SWF) since 1987. Thousands of people have been served and continue to be served by the SWFs one on one phone support, family networking program, education, physician referral service, medical education programs and research endeavors.

The Sturge-Weber Foundation is a 501 (c) (3) non profit organization with an ever increasing worldwide membership and is funded by corporate and private donations, grants and fundraising activities. The SWF was founded by Kirk and Karen Ball. They began searching for answers after their daughter, Kaelin, was diagnosed with Sturge-Weber Syndrome at birth. The SWF was incorporated in the USA in 1987 as an International 501(c)(3) non-profit organization for patients, parents, professionals and others concerned with Sturge-Weber Syndrome (SWS). In 1992, the mission was expanded to also support and serve individuals with capillary vascular birthmarks, Klippel Trenaunay (KT) and Port Wine Birthmarks.

Mission Statement

The Sturge-Weber Foundations (The SWF) international mission is to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions through collaborative education, advocacy, research and friendly support.

Vision Statement

The Vision of the Sturge-Weber Foundation is that in all areas of life public, professional, personal these goals will be achievable for our members.

In Awareness when the public will be able to see past the disability to the person.

In Empowerment when families and individuals will be able to obtain the medical care, employment, education, respect and personal achievement they seek

In Research - when the pace of discovery will not be hampered by lack of resources and will lead continually toward a cure and advances in treatment.

Photos

3

Supporters

15

Chelsie Moore

1 day ago

For all the hard work that you do, Jen Willard!!!!

$100.00

user

Bart Gilbert

8 days ago

Donated in memory of Mary M Gilbert.

$50.00

Janet Hartzell

15 days ago

In Memory of Mary M. Gilbert

$50.00

user

Ellen Leventhal

17 days ago

In memory of Robyn Campbell

user

Pj McIlvaine and Vivian Kirkfield

17 days ago

In memory of our dear friend Robyn Campbell

$50.00

About the charity

Sturge-Weber Foundation
Sturge-Weber Foundation

We exist to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions. We support them with collaborative education and advocacy in tandem with translational research as we promote effective management and awareness.

Charity Registration No: 742485813

http://www.sturge-weber.org

Donation summary

Total raised

$3,378.00

Direct Donations

$3,378.00

Donations via Fundraisers

$0.00

Offline donations

$0.00
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SWF General Donation

Sturge-Weber Foundation